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Lingual and Inferior Alveolar Nerve Damage Discussion Site

Subject: "Attitude and Empathy......."     Previous Topic | Next Topic
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Conferences Lingual or Inferior Alveolar Nerve Damage from Tooth Extractions Topic #62
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sgdaus2007
Member since Feb-27-08
124 posts
Apr-02-08, 09:50 PM (CST)
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"Attitude and Empathy......."
 
   I saw my GP this morning who advised that because of the Carbamazepine I am taking my platelet levels have been reduced - has asked that I continue for another two weeks before re-assessing whether we need to change medication.

As for the subject line, he is swimming in both these qualities and it made me think how I was looked after post-operatively before moving on to someone that gave a toss.

I firmly believe that there are two parts of empathy, which can be classed as follows: Skill (tip of iceberg) and Attitude (mass of the iceberg). Sadly there are a number of medical professionals out there who fail miserably at the second component of this creed.

I am fortunate now and very re-assurred that I am in very good hands from an oral and general perspective.


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  Subject     Author     Message Date     ID  
  RE: Attitude and Empathy....... bowho Apr-08-08 1
     RE: Attitude and Empathy....... sgdaus2007 Apr-10-08 2
         RE: Attitude and Empathy....... charlottefr Apr-10-08 3
             RE: Attitude and Empathy....... bowho Apr-10-08 4
                 RE: Attitude and Empathy....... charlottefr Apr-13-08 6
                     RE: Attitude and Empathy....... bowho Apr-13-08 9
             RE: Attitude and Empathy....... sgdaus2007 Apr-13-08 5
                 RE: Attitude and Empathy....... reesatay Apr-13-08 7
                     RE: Attitude and Empathy....... bowho Apr-13-08 8
                         RE: Attitude and Empathy....... sgdaus2007 Apr-14-08 10
                             RE: Attitude and Empathy....... charlottefr Apr-14-08 11
                                 RE: Attitude and Empathy....... bowho Apr-14-08 13
                                     RE: Attitude and Empathy....... charlottefr Apr-17-08 15
                                         RE: Attitude and Empathy....... bowho Apr-17-08 16
                                             RE: Attitude and Empathy....... charlottefr Apr-18-08 17
                                 RE: Attitude and Empathy....... charlottefr Apr-25-08 18
                                     RE: Attitude and Empathy....... bowho Apr-25-08 19
                                     memories charlottefr Sep-24-10 21
                                         RE: memories bowho Sep-27-10 22
                             RE: Attitude and Empathy....... bowho Apr-14-08 12
                                 RE: Attitude and Empathy....... sgdaus2007 Apr-14-08 14
                                     RE: Attitude and Empathy....... charlottefr May-24-09 20

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bowho
Member since Nov-27-07
821 posts
Apr-08-08, 12:52 PM (CST)
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1. "RE: Attitude and Empathy......."
In response to message #0
 
   how are you doing this week ? any improvement since last week ? sorry to hear the med is giving you problems..thats the problem with some of theses meds,they create more problems !! but some do help to make us more comfortable...


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sgdaus2007
Member since Feb-27-08
124 posts
Apr-10-08, 02:48 AM (CST)
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2. "RE: Attitude and Empathy......."
In response to message #1
 
   B,

This week from a personal point of view has been great - I've taken two weeks extended sick leave, and am at home with my family who have just been fantastic.....I sometimes forget what I've been through when around them given the love and support that they give me. I am very fortunate to have them and am now happy that i took the opportunity that work had afforded to me in taking this time off.

As for how I am feeling? Bizarre would be an understatement. I have different sensations/feelings everyday......teeth tight one day, strange gumbs the next, saw jaw here, headache there. When my family ask me how are things today it is very difficult to conceptualise.

I think i feel better because i am with loved ones, and for the first 8 weeks of my injury they were over 1000 miles away.

As for medicine - the Tegretol has done more for me than anything and has killed the pain significantly. internally it is playing up with some of my pathology which if untreated can become problematic....that is the problem. I'm scared that if they have to change the medicine the 24/7 pain will rear its ugly head again. The tegretol has been a godsend.

And I am sleeping well.......finally!!!!

how are you travelling this week??


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charlottefr
Member since Feb-22-08
425 posts
Apr-10-08, 08:31 AM (CST)
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3. "RE: Attitude and Empathy......."
In response to message #2
 
   LAST EDITED ON Apr-10-08 AT 08:33 AM (CST)
 
I'm so glad that you're with your family now, sgdaus...I'm thousands of miles away from mine too. They have just a little idea of what I'm going through or have gone through in the last months because I don't want to worry them 'over the miles'. I am going for a month long visit soon...and I can't wait. I'm sure that will speed my healing faster than meds! I'm going to have a good talk with family members and tell them what I've learned about nerve injuries so far. I get sick thinking about one of my children, especially, having to ever go through this! I want them to be more informed than I was.

I'm starting to decrease the dosage of the anti-depressant that I was prescribed because I want to see if I can handle my numbness without it. The combination of it and the medication for my increased migraines make me too tired and disoriented. I'm having trouble focusing at home and work...and preparing my taxes has been more overwhelming than usual!

So I understand what you mean when you say you're scared to change meds. I never want to go back to feeling how I did in the first few weeks. My doctor explained that if I notice a return of symptoms after going off the anti-depressant, then I can just start taking it again. I hope I won't have to.

I hope you get to do lots of enjoyable things today that help to take your mind away from your discomfort, etc...


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bowho
Member since Nov-27-07
821 posts
Apr-10-08, 04:16 PM (CST)
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4. "RE: Attitude and Empathy......."
In response to message #3
 
   i only wish one med did wonders for me...especially in the first few months. i might not have ended up in nerve repair surgery 6 1/2 months later..
so you 2 should consider yourselves on the verge of recovery maybe ? of course every injury is a little different in healing...
by the end of the first year i was on paxil, wellbutrin, percocet, flexaril, neurontin, and a med to keep my high blood pressure down....talk about a state of confusion !!
ive only been off 5 of the meds completely for about a 1 1/2 years now..i still use flexaril when the burning and the clamp like feeling gets out of control..thats what i find helps me these days 6 years later..ive become used to the numb tongue because i have no choice..ive come to the conclusion at this point its as good as it gets....unless a miracle occurs !! vacationing on the gulf of mexico 4 times didnt really cure me...all i came home with was a sunburn..


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charlottefr
Member since Feb-22-08
425 posts
Apr-13-08, 07:36 AM (CST)
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6. "RE: Attitude and Empathy......."
In response to message #4
 
   Sorry I missed reading this post before, bowho...yes, state of confusion sums it up well and I'm only taking two meds. I can't believe you were on six different meds by the end of your first year post-injury. To me, that demonstrates how serious an injury can be to the lingual nerve. I don't weigh alot so being on these meds can be hard on my body as well as my mind, I think. Menopause doesn't help any either.

I do feel that I'm recovering (I'm at the 3 month point) but I don't know how far it will go. It seems to have been more rapid since I started taking the Nocertone for my migraines (neurologist prescribed last month). I have no idea if taking that particular med plus the anti-depressant made the difference in recovery rate or not. I've been trying to find out if Nocertone is the same type of med as Neurontin. Have you heard of it?

I'm concerned now because the 'tingles' in my lip have subsided alot lately (as mmdonahue wrote before, I kind of miss them!) With more feeling coming back, I feel throbbing in all of my bottom teeth on the numb side from time to time. I am really scared that this is as good as it's going to get. I'm trying to be hopeful though.

It's been cold and raining for weeks here. I had to be outside alot yesterday and there was a constant feeling of icewater 'running' in my chin. Combined with the burning in my lip. It was very uncomfortable...these cold and hot feelings in my face.

How lucky that you had four vacations to the Gulf of Mexico...wow..how did the sun feel on your face? I dream of that these days...


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bowho
Member since Nov-27-07
821 posts
Apr-13-08, 04:08 PM (CST)
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9. "RE: Attitude and Empathy......."
In response to message #6
 
   charlotte

thats for sure the drugs take a toll on the mind, body and soul..along with the injury..good thing your tingles have tamed down at 3 months..imo thats a biggie and your getting more feeling back...thats great..i never heard of nocertone..(ive asked reesatay if she knows) what anti depressant are you on ? i got the most relief from the burning and the tingles from neurontin..they say it helps with the abnormal nerve stimulation..it really helped but not totally...these days when the burning flares and the vice like feeling flares up i take flexaril..its a muscle relaxant..kills everything except the numbness..i dont know if that works on the lip and chin ? the sun is a wonderful thing !!


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sgdaus2007
Member since Feb-27-08
124 posts
Apr-13-08, 04:34 AM (CST)
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5. "RE: Attitude and Empathy......."
In response to message #3
 
   charlottefr.

you are so right about being with loved seemingly speeds up the process - thankfully I have an amazing mother and father and sister who have just made me feel unbelievable in the past week......we all recognize this handicap is absolutely soul destroying but it is the support network which keeps us going - to me nothing is more important at the moment. nothing else matters than getting emotional control over this so i can move on, albeit in some form of pain.

Even being in the presence of the family dog has made me happy - as I type this she is sitting at my feet wanting a scratch on her belly. these little things i've come to learn are the things that are helping me through.....whilst I have the ability to lose it at the drop of a hat, i try and limit the incidences or situations which would lend themselves to an outpouring of emotion.

Externally the meds are doing a wonderful job from a pain perspective but internally they are throwing around my pathology. Unfortunately I have no control on what my platelet level does as a result of taking the Tegretol.

Will keep you posted....12 weeks tomorrow and a different pain sensation every day.


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reesatay
Member since Sep-29-06
1126 posts
Apr-13-08, 02:07 PM (CST)
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7. "RE: Attitude and Empathy......."
In response to message #5
 
   Charlottefr,

Ask your doctor about taking Trileptal. It is my understanding it is very similiar to Tegretol, but has a lower possibility of messing with your platlet count.

"T"

"T"


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bowho
Member since Nov-27-07
821 posts
Apr-13-08, 03:19 PM (CST)
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8. "RE: Attitude and Empathy......."
In response to message #7
 
   reesatay

to your knowledge, isnt trileptal, tegretol and neurontin all in the anti seizure med family ? i remember my neurologist telling me he could give me tegretol because it was cheaper but it had more unpleasant side effects. i think its sgdaus on tegretol..they have charlotte on nocertone and a anti depressant..do you know what nocertone is ?


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sgdaus2007
Member since Feb-27-08
124 posts
Apr-14-08, 03:31 AM (CST)
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10. "RE: Attitude and Empathy......."
In response to message #8
 
   B / Reesatay

The main side effect of Tegretol for me is the tiredness and fatigue.....man I must yawn three hundred times a day and feel in a perpetual daze. But it has quelled the pain to the point where i don't have to take anything else. (ranging from 3-6 out of 10 on a pain factor)

They had me on Endep (amitryptyline) and it did absolutely nothing (pain was still a 9) and i will never go back on that stuff.

Are the other drugs you speak of similar and do they have the same effect?


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charlottefr
Member since Feb-22-08
425 posts
Apr-14-08, 05:37 AM (CST)
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11. "RE: Attitude and Empathy......."
In response to message #10
 
   sgdaus, that's exactly how I've felt since starting to take these two meds..I'm in a "perpetual daze". It's absolutely necessary that I write things down...lists have become even more important in my daily life now. I have to repeat to myself several times where I have parked my car in the city...I worry that one day I'll forget where I have parked it.

One of the side effects of Nocertone is sleepiness. For me, I feel tired but I can't nap anymore and I often stay up until 1 or 2 in the morning. But, when I do get to bed, I sleep well during the night and it's the first time in years that I've slept for 8 hours straight.

Bo, the information leaflet with Nocertone says that the main ingredient in Nocertone (an anti-migraine med) is "fumarate d'oxeterone". I have no idea what that is. This medication is manufactured in Portugal so maybe it's not available in North America or it's known by some other name? It's working very well to control my migraines. I've only had two - one the day after starting the med mid-March and the other about two weeks ago.

If I get a migraine, I'm to take another med for the crisis...it's called Tigreat (Frovatriptan 2.5 mg). I took one for the last migraine and it worked well to control it...but I was very spaced out. I slept during that day!

The anti-depressant is an amitriptyline and is called "Laroxyl Roche". I started taking four drops a day and have now gone down to two drops a day hoping to stop taking it if possible.


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bowho
Member since Nov-27-07
821 posts
Apr-14-08, 04:06 PM (CST)
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13. "RE: Attitude and Empathy......."
In response to message #11
 
   charlotte, iv heard coming off liquid form anti depressant is alot more easier than coming down off pill form..it took me a year to get off the anti depressants....good luck..


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charlottefr
Member since Feb-22-08
425 posts
Apr-17-08, 06:49 AM (CST)
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15. "RE: Attitude and Empathy......."
In response to message #13
 
   How do you get off an anti-depressant that is in pill form? I guess liquid form would be easier to decrease over time. I just wish I knew if I should do it or not. Taking the anti-depressant was prescribed for the benefit of my injured nerve, but sure didn't do anything for my depression. If anything, it made me more depressed having to take it and to have to deal with the side effects!

I wonder if I'm having increased pain and throbbing in my teeth because I've decreased the dosage...sigh. When is 'somebody' going to do some serious studies on what works or not with these injuries?


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bowho
Member since Nov-27-07
821 posts
Apr-17-08, 06:57 PM (CST)
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16. "RE: Attitude and Empathy......."
In response to message #15
 
   char,
we are doing a great deal of studying what works for each other right here..best advice we will ever get anywhere in our lifetime probably as far as i can see...have any of your doctors ever seen a person in your condition ?
thats almost like a doctor seeing someone with withdraw symptoms from an anti depressant..they dont know to much about that either..i had to switch doctors when i felt like i was going threw heroin withdraw...
brain zaps and body zaps along with seeing light zaps with my closed eyes at night was quite frightening especially with all the tongue zapping..
i was on a high dose of paxil..
i had to add zoloft at a higher dose and then slice tiny pieces off gradually...so i ended up coming off zoloft..thats why it took a year of hell...i was more depressed coming off the anti depressant than at any other point in the injury..and when i stopped each drug sure the pain became more noticeable but i say ive adjusted well in my time..imo the anti depressant didnt do jack schitt for the nerve pain as they claimed..it made me not think of the pain as much probably because i was sleeping all the time.. it did put me in a much calmer mood at all those doctor and dentist visits !! good thing for them


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charlottefr
Member since Feb-22-08
425 posts
Apr-18-08, 06:41 AM (CST)
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17. "RE: Attitude and Empathy......."
In response to message #16
 
   lol...good theory about the 'anti-depressants'.

I remember asking my OS at my first appointment (pre-surgery) if there had been other patients with numbness that he had seen. He said he had but I got the impression from him that they recovered with little or no problem so I didn't pursue it or ask any more questions. I wish I had asked more questions.

I'm pretty sure this is the first time that my family doctor has seen this condition...I'll ask him next time I see him. The town that he works in is quite small. My dentist was aware of nerve injury because she immediately referred me out after she did the xray. I don't think she knows too much about how to treat this but she is compassionate and empathetic (sp?)...and that has definitely contributed to my healing to this point.

I have to say again that I don't know where I would be today without this forum...I would have been totally alone (in a foreign country) with this and that is a frightening thought. I often think about all the people with IAN or lingual nerve injuries who don't have access to a computer or who don't have money or insurance which allow them to even seek advice or help from medical/dental professionals post-injury. It must be terrible for them.

You're right that this forum is a wealth of information. I am so glad that it's here...a big thank you to the webmaster!


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charlottefr
Member since Feb-22-08
425 posts
Apr-25-08, 08:02 AM (CST)
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18. "RE: Attitude and Empathy......."
In response to message #11
 
   LAST EDITED ON Apr-25-08 AT 08:04 AM (CST)
 
Well, I know what you guys mean when you say that you have to keep trying different meds until you find one that works. I've been having a severe bout of diaharea (I can never spell that word)for the last ten days or so.

I didn't think it could be related to the meds I'm taking because I had been taking the anti-depressant for weeks and the Nocertone for a month without any severe side effects except for a little 'mind numbness'. Anyway, the D kept getting worse so I checked the insert for this drug again and it says that it may cause "D". Then I checked on the internet...found a French forum where they were discussing Nocertone and its effects. People on there said they got "D" after a month of taking this drug so they stopped taking it...sigh.

Yesterday, I tried phoning the neurologist about this, but he's out of the office until Monday...so I had to call my poor family doctor yet again to ask him to look up Nocertone to see if it would be safe for me to stop it quickly. He came back on the phone and said "Yes..Nocertone can cause D...and you can stop taking it now".

So....last night, I stopped the migraine med and the anti-depressant (I had been down to one drop a night for about 4 days). Today, I had to take a couple of Ibuprofen (are those safe??) for the pain in my teeth...and otherwise I don't notice too much of a difference. I still feel 'spaced out' but hopefully that will lessen in a few days.

I've started going to a "kinesitherapeute" (sorry, I don't know what that is in English?) as the first step in trying to get my jaw joint to unlock. That was supposed to have been fixed by having my wisdom tooth out...but that didn't happen. I've had three sessions with her so far..and I'm not sure if it's helping my jaw yet...but it definitely helps with relaxing my facial muscles....something else I think I need to learn to do to help speed this healing up a bit more!

I got caught in a traffic jam on the way home from work today and had lots of time to think. My lip was burning, my teeth were aching and I couldn't wait to get home to take some Ibuprofen. Anyway, I was seriously contemplating just getting all my back teeth pulled on the lower left "numb" side. The prognosis for my second molar isn't great now anyway (that's another story). I know that the pain I'm in is way less than other's pain...but, I'm honestly sick and tired of this situation..literally.


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bowho
Member since Nov-27-07
821 posts
Apr-25-08, 02:27 PM (CST)
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19. "RE: Attitude and Empathy......."
In response to message #18
 
   hi charlotte,
sounds like your having a bad day..sorry..i know how sick and tired your feeling..its just awful...and to top off the D word...bummer..maybe its a side effect of lowering you antidepressant also..if thats your worst side effect, your doing good..if the pain is the same then you know it wasnt working.. we all feel like yanking our teeth out sometimes but i dont think thats a cure..sorry to hear on top of everything you got a locked jaw..omg..i hope something works for you soon..


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charlottefr
Member since Feb-22-08
425 posts
Sep-24-10, 07:45 PM (CST)
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21. "memories"
In response to message #18
 
   LAST EDITED ON Sep-24-10 AT 07:46 PM (CST)
 
This post really brought back memories for me...I wrote it two and a half years ago...four months after my IA 'injury'. I can vividly remember sitting in my car in alot of pain and discomfort that day.

I can compare how I feel now to then. My lip is still numb with altered sensation but only burns when I'm tired or if I've had to talk alot. My lower teeth on the injured side don't ache anymore...so I'm really glad I stuck it out and didn't have them removed! My gumline is still slightly numbed but I can feel when I brush. My front tooth still feels very wierd (still tight) and "out of place" in my mouth (it's the tooth that had the vice grip feeling in it really badly). I'm still getting shoots of pain occasionally in my chin and lip but nothing that some Ibuprofen can't take care of. My chin is almost back to normal...some abnormal feelings when I scratch it but nothing like a year or two ago! Migraines are still bad...growing in intensity and length.

One thing hasn't changed however. I'm still sick and tired of this situation. I've reluctantly accepted the fact that I've probably been permanently injured...but I am having more trouble accepting whether or not the injury had to have happened on that fateful day 2 and a half years ago or whether it could have been prevented! In my heart, I still believe it could have been prevented.


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bowho
Member since Nov-27-07
821 posts
Sep-27-10, 09:15 PM (CST)
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22. "RE: memories"
In response to message #21
 
   Well at least some nerve recovery is better than none after so long... Seems like you are doing way better except for those headaches... to bad most dont even know how it happened let alone if it could have been prevented... We ended up with 2 different injuries from the same procedure!!!


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bowho
Member since Nov-27-07
821 posts
Apr-14-08, 03:56 PM (CST)
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12. "RE: Attitude and Empathy......."
In response to message #10
 
   LAST EDITED ON Apr-14-08 AT 03:57 PM (CST)
 
sgdaus,
when i was on neurontin and a anti depressant called paxil.. i could barely get out of bed to eat..everything i did was an effort..and i had the crs going on also..my brain is regaining its ability to function normal...thank god !


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sgdaus2007
Member since Feb-27-08
124 posts
Apr-14-08, 04:38 PM (CST)
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14. "RE: Attitude and Empathy......."
In response to message #12
 
   thanks for the info - will take under advisement with the professor should the meds need changing.

for the first 8 weeks post operation sleeping was terrible - i was lucky if i got 3-4 hours a night.....with the advent of the tegretol i have been sleeping like a baby, and to be honest I almost look forward to the evening more than anything.

I find around midday 1pm i am knackered and almost want to have a sleep but push through it....have started some light exercise also which seems to be helping.

I've got my bite back (can feel both sides of my mouth when biting dowm) don't know whether that is a good sign as i still cannot chew on the damaged side but i guess it is sometihng.

Normal function......what a lovely thought that would be!!!

best wishes to all

SD


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charlottefr
Member since Feb-22-08
425 posts
May-24-09, 03:59 PM (CST)
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20. "RE: Attitude and Empathy......."
In response to message #14
 
   Some links to articles discussing empathy in dentistry...

C. YARASCAVITCH, G. REGEHR, B. HODGES, and D.A. HAAS, University of Toronto, Toronto, ON, Canada

Objective: The demonstration of empathy in dentist-patient interactions significantly affects treatment outcomes, however studies have shown that empathy declines as dental students progress through training.

In our previous work with dental students, evidence of decreasing emotive empathy (Emo) combined increasing cognitive empathy (Cog), localized to the professional context, was interpreted as being consistent with the formation of detached concern as a model of professional empathy

http://iadr.confex.com/iadr/2009miami/webprogram/Paper118320.html

It sounds awesome; it sounds difficult. It probably is the most important part of the dentist - patient relationship. If you’re talking with a patient and can identify to the extent of thinking, “If I were he, knowing what I know about dentistry, how would I want to be treated?” then you have achieved empathy. This is the beginning of trust.
http://www.spiritofcaring.com/public/218.cfm?sd=75

Further, first-year dental students had significantly higher empathy scores than students in any subsequent year. Consistent with the literature in medical settings, the timing of the decline in empathy levels corresponded to increases in patient exposure. We suggest that training students in the interpersonal skills designed to enhance the dentist-patient relationship should continue throughout dental school training.
http://www.jdentaled.org/cgi/content/abstract/69/3/338


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