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Lingual and Inferior Alveolar Nerve Damage Discussion Site

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Conferences Lingual or Inferior Alveolar Nerve Damage from Tooth Extractions Topic #872
Reading Topic #872
Mary
unregistered user
Feb-16-06, 02:25 PM (CST)
 
"Hypersensitivity"
 
   My IAN was damaged from a lower left wisdom tooth extraction 4 years ago, so I long ago lost hope that there will be any improvement. I am not in any pain and the area is not numb. The feeling in the lip and chin area is altered, and is extemely hypersensitive. I can't bear the slightest touch or even one of my hairs blowing across it. Talking is difficult as I cannot stand any movement of the area. This injury has been absolutely devastating and there are no words to describe it. What I wouldn't give to be able to talk and laugh without thought. Is there anyone out there that has the same thing? If so, how do you bear it?

An oral surgeon told me a long time ago that since the nerve was not severed, repair surgery could not help. I am angry that the oral surgeon who did the extraction, and the dentist who recommended it, did not explain the risks. Why are we led to believe that wisdom tooth extraction is a routine procedure???


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  Subject     Author     Message Date     ID  
  RE: Hypersensitivity Reesatay Feb-16-06 1
     RE: Hypersensitivity Mary Feb-16-06 2
         RE: Hypersensitivity Reesatay Feb-16-06 3
             RE: Hypersensitivity Mary Feb-16-06 4
                 RE: Hypersensitivity Reesatay Feb-16-06 5
                     RE: Hypersensitivity Mary Feb-16-06 6
                         RE: Hypersensitivity WIS Dec-09-08 10
  RE: Hypersensitivity healing mouth Feb-17-06 7
     RE: Hypersensitivity Mary Feb-17-06 8
         RE: Hypersensitivity healing mouth Feb-17-06 9
             RE: Hypersensitivity sgdaus2007 Dec-10-08 11

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Reesatay
unregistered user
Feb-16-06, 02:31 PM (CST)
 
1. "RE: Hypersensitivity"
In response to message #0
 
   Mary,

If you have a neuroma then surgery may help even after this length of time. Have you been seen by a specialist to evaluate your situation? Are you on any meds?

"T"


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Mary
unregistered user
Feb-16-06, 04:56 PM (CST)
 
2. "RE: Hypersensitivity"
In response to message #1
 
   I saw an oral surgeon who prescribed neurontin. He said it was more for nerve pain, but thought we should try it. I didn't notice any difference. We then tried elavil, which he said could alter the brain's perception of pain or sensation. Unfortunately that didn't work either. I would be willing to try any medication that would help.

I also saw a neurologist, who said that other than trying neurontin, there was nothing we could do.

No one has suggested I might have a neuroma. It sounds worth looking into...I think I'll google it right now. Thanks for your input.


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Reesatay
unregistered user
Feb-16-06, 05:10 PM (CST)
 
3. "RE: Hypersensitivity"
In response to message #2
 
   Mary,

I used capsacian cream... burns like heck when applied, but did take away some of the burning pain after I used it for awhile. I also used Lidocaine patches... you might not be able to tolerate this because it would be touching your skin for 12 hours, but it is worth a try. I've also read of people using ELMA cream to help stop the hypersensitivity.

There are more meds then just Neurontin and Elavil to help with nerve pain. I found Trileptal the most helpful. Currently I'm on Cymbalta.

Read around and then talk to your doctor about some of the other meds and treatments mentions.

Take Care
"T"


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Mary
unregistered user
Feb-16-06, 06:03 PM (CST)
 
4. "RE: Hypersensitivity"
In response to message #3
 
   "T", did you find with the capsacian cream and the lidocaine patches that they only worked while applied, or did they desensitize the skin at all after continued use?

Also, what kind of doctor prescribes your medication? I had gotten mine from an oral surgeon, but we just moved to a new state.

Do you have hypersensitivity or pain? My doctors seemed to think the medications were more helpful for pain. Is the Cymbalta helping you more than the Trileptal?

Thanks.


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Reesatay
unregistered user
Feb-16-06, 07:39 PM (CST)
 
5. "RE: Hypersensitivity"
In response to message #4
 
   Mary,

Trileptal was the best med I took and I've taken a lot of different meds, but each med I took did something for me. I found taking several different meds at a time helped me the most. It is trial and error to find the right combo and dosages and it changes all the time. I think the topicals helped the most for the skin sensitivity, but I think everything I took worked together for my best relief. I needed both medications and topical treatments to help me.

At one point I couldn't touch my face to the pillow or have a breeze blow on it without discomfort/pain. It was hypersensitive and if touched the discomfort kept increasing even after I moved away from the touch. The capsacian cream did desensitized my skin after using it awhile. It is necessary to do this long term to get a good effect. It did burn each time it was applied and sometimes brought tears to my eyes, but once the initial burning went away my skin felt less sensitive at least for awhile. I did both the capsacian and lido patches for several month each day. I know there has been several posting of topical treatments so do a search on topical for more info.

What happens when your face is touched? What does your hypersensitivity feel like? Most of my burning pain has gone, but I still get itching, tingling and a just general odd feeling to my face now.

My Family doctor and neurologist helped with my treatment. My family doctor was the most helpful of all and she is who I only seeing now for treatment. The OS that injured me was useless in my care, but I did follow up at USCF Oral Surgery Clinic and this OS (nerve specialist) knew what she was doing and agreed with what my other doctors where doing for me.

I also used Acupuncture for relief. I don't know if it would help you, but if you haven't tried it I recommend you do. Another think I did was apply hot compresses or hot showers to my face. This gave me temporary relief.

"T"


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Mary
unregistered user
Feb-16-06, 10:26 PM (CST)
 
6. "RE: Hypersensitivity"
In response to message #5
 
   Thanks for the very helpful information. I had given up hope that there was anything that could help me, but I am going to try the topical treatments to see if I can desensitize my skin somewhat. I am willing to try the medication as well, though I don't have as much hope that it will help.

There is no burning feeling at all to my lip and chin, but an unbearable tingling. Also a pulling and stretching feeling when I talk or smile. There's a constant awareness that is so aggravating.

I'm glad to hear that you've found treatment that helps you. It sounds like you've been through a lot with your injury. It's great that you've found a good doctor to help you.


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WIS
Member since Oct-2-08
5 posts
Dec-09-08, 09:36 AM (CST)
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10. "RE: Hypersensitivity"
In response to message #6
 
   Hi Mary- I know it's been awhile since your post but I wondered whatever became of your problem. I also have been left with hypersensitivity from some nerve damage. It's been almost two years. The funny thing is, it has gotten worse rather than better. It is supposed I might have a traumatic neuroma but if so it would be too small to remove (to find). I have found it difficult to describe to doctors what the feeling is, but your description of pulling/stretching comes close, as does 'There's a constant awareness that is so aggravating'. Did you ever find a remedy to your problem? Do you find that it is worse on some days and better on others? I hope you are feeling better.


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healing mouth
unregistered user
Feb-17-06, 06:02 AM (CST)
 
7. "RE: Hypersensitivity"
In response to message #0
 
   Mary, I do have IAN damage from my lower wisdom extraxtions 20 months ago but I am lucky that has healed lots, to an unpainful level; but my right lingual injury, (& a milder left lingual damage) makes talking a painful experience for me. I have hypersensitivity in my inner lower gum, right side, so any touch on it, like my tongue, food, toothbrush, really hurts that gum & sends shooting pains all through the gum & tongue too. also my tongue burns, pulls, & feels deformed, sore & like hot knives are being stuck into it all the time. So I understand when you say, 'what I wouldnt give to be able to talk & laugh without thought'. This is stopping me going to work as my job involves talking & I know it will be very hard. My relationship is different with my boyfrnd now as I try to be economical with my words to save me some pain. I dont pronounce words properly & look for the shortest way to say things when the pain is at its worst, as it goes up & down in intensity from minute to minute (the tongue pain, it jumps around the tongue too). I think thats the only way I bear it, knowing it does vary so there are times I can talk a bit more than other times.
Mine has been life altering. I also would like to know why my extractions were talked of by the OS consultant I was seeing as being a routine procedure, when the actual surgeon who I only met 5 mins b4 the op said my w/t were closer to my nerves than most peoples. He knew I had higher risks of nerve damage but didnt tell me this directly. If he had I would have withdrawn consent & WALKed out the hospital.
I hope we can make this experience have a positive element, even if we carry on feeling bad for ages. I want to stop it happening to new people so often by getting our voices on this heard. POWER TO US! PEPLE SHOULDNT BE IGNORANT OF HOW MAJORLY NERVE DAMAGE IN THE MOUTH AFFECTS PEOPLE. HEALING PRAYERS & WISHES


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Mary
unregistered user
Feb-17-06, 08:52 AM (CST)
 
8. "RE: Hypersensitivity"
In response to message #7
 
   I really feel for you! It's just unbelievable that both your lingual nerves and your IAN could be damaged. I understand what you mean about being economical with your words, and how this has affected your relationships. It's hard for my husband to understand why I'm so quiet, and I want to be able to banter with my children the way I used to. I cry inside every day that I'm not the best mother I could be.

I agree that there has to be more awareness/understanding of how life-altering this nerve damage is. I have read that in Britain, they are now recommending that extraction take place only as a last resort, and not as a routine matter. I have warned many friends and family members about my experience, but I wish the message could spread.

Have you tried medication? I'm not too sure it could help me with my sensations, but since you experience such pain I was wondering if medication could help you at all.


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healing mouth
unregistered user
Feb-17-06, 11:29 AM (CST)
 
9. "RE: Hypersensitivity"
In response to message #8
 
   Thanks for your kind words Mary. I also feel for you, esp as you have children & find it hard to talk freely now.
I know its almost unbelievable for 3 nerves to get damaged but I have a suspicion the OS wasnt really qualified, as he no longer works at the hospital where he damaged me & his degree is from the University of Southampton which was known to give fake qualifications to overseas students. He was pulled in from the Uni by my consultant to do my op & his title was 'Research fellow'.
I have tried Neurontin, amitriptaline, tegrotol which didnt help so manage for now with opiate based meds. This is not ideal & doesnt relieve all the pain but its the best solution I've found so far. I really dont want any pills that may damage other organs in my body, like my liver & kidneys. I am aware opiates are not without problems but I had some experience with them already so feel I know where I am & that my body can cope with them. I am trying to ensure my body gets all the nutrients it needs so it is able to repair the nerve, & have had basic blood tests for this reason. I had low thyroxine levels in a test a while back & tho the Dr/GP wasnt concerned I want to get it retested, as it may affect my perception of the pain.
Wishing you better. I believe in complimentary medicine & feel when I can get my whole body in balance it may find a way to make me feel recovered.


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sgdaus2007
Member since Feb-27-08
117 posts
Dec-10-08, 03:43 AM (CST)
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11. "RE: Hypersensitivity"
In response to message #9
 
   Healing Mouth and Mary,

I know exactly what you're going through as i am eleven months post wizdom extraction and have IA damage on the left hand side.....my predominant symptom is hypersensitivity in the chin area from the under the middle of the lip to the corner and below.

I was on Tegretol for 6 months stopped taking it, things started to get fantastically better and now I've had a pretty harsh relapse which has made me not the happpiest.

My injured nerve is principally intact like yours mary but in 11 months despite the improvement internally, there has not been any discernable lessening of hypersensitivity in when shaving, talking, or anything for that matter coming into contact.

You speak of stretching and pulling - I feel that every day and trying to explain it just makes it harder.

I work in a sales capacity at a senior managerial level and my capacity to deal with it is becoming untenable. I have spoken with my treating professor and given that the window for surgery is slipping have been given some options:

1. Wait and see if it gets better with no internvention
2. Surgery - decompression of the nerve and potential cryofreezing of the nerve. The neuro i saw had mentioned that it is highly plausible that there is some swelling internally hence freeing up the nerve in the canal may simultaneously help the issue. The freeze is purely for pain internvention
3. Go back on meds - neither courses I took were good on liver or kidneys so this is unlikely.

I know how miserable this affliction is and feel for you both. I turn 30 years old on Sunday and it pains me to say that when I should be living life to the fullest, I can somedays not even walk probably on account of the pain.

2008 will not be remembered fondly. My only hope is that things settle over time otherwise the aforementioned surgery above will definitely be looked at.

Keep me informed please with your progress.

SGD



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