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Lingual and Inferior Alveolar Nerve Damage Discussion Site

Subject: "Burning mouth"     Previous Topic | Next Topic
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Conferences Burning Mouth Syndrome Discussion Topic #100
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babytbear
Member since Jul-10-08
2 posts
Oct-13-08, 04:44 PM (CST)
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"Burning mouth"
 
   Hi everyone , just a couple of notes to add to my long ,very long entry ,, Last, Nov. 07 when I had the grinding procedure for my crowns , I immedietly had electric shocks coming from my #7 crown , and my lip was completly numb above the #7 crown, which lasted for 3-4 months,when I told the dentist this numbing was going on , all he said is "that will go away " after the crowns were cemented in Nov. 27th 07, I kept telling the dentist how much the crowns were hurting, and the elec, shocks were increaseing the pain , he would just sand the backs of the teeth causeing even more discomfort, and leaving the backs of the crowns in a very gritty feeling on my tongue I was in the dentist office for five weeks straight each week with pain ,middle of Jan 08 he did a root canal through the #7 crown , elec, shock lessened , but has never stopped , I went to a specialist on root canals and he told me the root canal was complete but he thought there was neurological damage , he reffered me to the dentist who did the second set of crowns , that dentist sent me to a oral facial person when my symptoms continued after the second set of crowns , the oral facial spec, then refferred me to a specialist on burning mouth syndrome, for dental material testing and bms,He then told me only that i had nerve damage and bms, no dental material allergies, gave me prescriptions for mouthwashes and sent me to a neurologist , at the pain clinic he worked at , who in turn then told me I do not have burning mouth syndrome , but nerve damage , that is causeing all my burning symptoms , and I need to start amitriptyline drug treatment ,,,by this time which would be Aug/08 my husband was so angry he called the the Mayo hospital for an appt. for me so that is what i have been doing for the past weeks getting dental material testing ,, The dermatologist said if nothing turnsup as an allergy we are looking at a more complex problem , Burning mouth Syndrome ,,,,,, This is 11 1/2 months of pure will power to not give up and accept BMS.... I hate all of this ,,, no matter what I have tried everything just keeps hurting , my only slight help/break is a bowl of ice cream at 10.00 pm each night before bed ,,I also take B vitamins , and lipoc acid ,,, no difference in pain ,for me ,I am praying for all of us who suffer , and all who will suffer and not know what is going on in their mouth ,,, Thank you GOD for the people who have sympathy for suffers with this dreaded syndrome that is unknown to many medical and dental professionals, I 100% believe my symptoms are completly dental procedure caused , I was always in excellent health,until this procedure , Will post a note after the Mayo hospital results ,,, Susan from St. Paul , MN

susan


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bowho
Member since Nov-26-07
614 posts
Oct-13-08, 09:13 PM (CST)
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1. "RE: Burning mouth"
In response to message #0
 
   Hi, I just read your story and im 100% convinced you were injured by the dental procedure too .. Welcome to nerve injury site ... Hope you find some answers here ..


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Grace15
Member since Jul-22-08
7 posts
Oct-14-08, 10:25 AM (CST)
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2. "RE: Burning mouth"
In response to message #0
 
   Susan, I am so sorry to hear about your awful ordeal. I have been suffering with Burning Mouth Syndrome for 6 months and was just diagnosed two months ago. I haven't been dealing with this as long as you have, but I can sympathize with how badly you are suffering. In my case, it did not start after any dental work. It started about three weeks after I had an upper respiratory infection. The oral medicine specialist said I have idiopathic BMS (which means they have no idea what caused it) and I have been having a very hard time accepting this diagnosis and I keep searching for answers as well. I have had every test imaginable: oral thrush, Vitamin B deficiency, thyroid, blood glucose for diabetes, allergy tests, upper GI series (to test for acid reflux). I just recently had an MRI which was completely normal. The Neurologist looked at all the tests I've had and said that he felt there was nothing more he could offer me. You mentioned you are taking gabapentin. I tried that and it didn't do much for me. The only medication that has helped the burning pain for me is Clonazepam (Klonopin). I take 1 mg a day, .5 mg in the am and .5 in the pm. In my case, it has taken the pain from an 8 down to about a 4, so that is significant. I know many BMS sufferes who have responded well to Clonazepam, but everyone is different, what works for some doesn't work for others. Just thought I'd pass this along. There is also a web site that is just for BMS, www.go4hope.org. It is the largest web site for BMS and you may find some information and support there. Please do post the results from your Mayo Clinic tests. I know how difficult it is to hang in there, but just know that you're not alone and there are many out there who understand what you're going through. Best of luck. Grace


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