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Lingual and Inferior Alveolar Nerve Damage Discussion Site

Subject: "Nerve damage, burning tongue, mouth???"     Previous Topic | Next Topic
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June
Charter Member
2 posts
Oct-19-00, 09:53 PM (CST)
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"Nerve damage, burning tongue, mouth???"
 
   I had ten crowns put on my top teeth. What a nightmare. Things went wrong from the very beginning. The temporary was terrible. I was told the crowns would be fine. I literally chewed up the inside of my mouth. The dentist thought I was allergic to something in the material used, so he ground the crowns away and put another temporary on, which was supposed to be like my original teeth. The nightmare continues. It feels as if my teeth are "misplaced" especially on the right side. Putting my top and bottom teeth together is extrememly sensitive, but perhaps the worst of all is my tongue. It is so sore. It feels as if it is scraping on the teeth when I talk. I have to talk all day at work, so needless to say, it is very sore, not to mention the teeth "being in the wrong place." My dentist says it is an emotional problem, and that I need to see a counselor. He has basically thrown up his hands. Meanwhile, I still have the temporary. He keeps saying we have to wait for everything "to settle down." The burning and soreness is all over my tongue but mostly on the right side. Sometimes I can see redness or blisters on my tongue, but most of the time it looks normal. But it feels like it is "misplaced, too big for my mouth, and my teeth feel like razor blades." Any comments or suggestions.
Thanks,
June


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  Subject     Author     Message Date     ID  
  RE: Nerve damage, burning tongue, mouth??? abby Oct-26-00 1
     RE: Nerve damage, burning tongue, mouth??? LL TRUESDELL@AOL.COM (Guest) Dec-26-00 3
         RE: Nerve damage, burning tongue, mouth??? Sorin (Guest) Apr-10-01 8
     RE: Nerve damage, burning tongue, mouth??? Aldape (Guest) Aug-31-01 41
     RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 51
         RE: Nerve damage, burning tongue, mouth??? richard u Aug-29-07 63
  RE: Nerve damage, burning tongue, mouth??? Marilyn (Guest) Dec-23-00 2
     RE: Nerve damage, burning tongue, mouth??? Dade (Guest) Jan-02-01 4
     RE: Nerve damage, burning tongue, mouth??? Sorin (Guest) Apr-10-01 9
     RE: Nerve damage, burning tongue, mouth??? June (Guest) Apr-26-01 10
         RE: Nerve damage, burning tongue, mouth??? Judie (Guest) Apr-27-01 11
             RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 44
         RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 50
     RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 49
  RE: Nerve damage, burning tongue, mouth??? Carole (Guest) Apr-09-01 5
     RE: Nerve damage, burning tongue, mouth??? Rossadmin Apr-09-01 6
     RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 45
     RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 48
  RE: Nerve damage, burning tongue, mouth??? Sorin (Guest) Apr-10-01 7
  RE: Nerve damage, burning tongue, mouth??? carolyn (Guest) May-03-01 12
     RE: Nerve damage, burning tongue, mouth??? June (Guest) May-10-01 13
         RE: Nerve damage, burning tongue, mouth??? SandyC May-20-01 14
             RE: Nerve damage, burning tongue, mouth??? Rossadmin May-20-01 15
                 RE: Nerve damage, burning tongue, mouth??? SandyC (Guest) May-20-01 16
                 RE: Nerve damage, burning tongue, mouth??? Jayde Dec-05-06 57
                     RE: Nerve damage, burning tongue, mouth??? blue05 Dec-17-06 58
         RE: Nerve damage, burning tongue, mouth??? kay simpson (Guest) Jul-04-01 39
     RE: Nerve damage, burning tongue, mouth??? sheila Oct-29-05 56
  RE: Nerve damage, burning tongue, mouth??? bmwright May-30-01 17
     RE: Nerve damage, burning tongue, mouth??? SandyC (Guest) May-30-01 18
         RE: Nerve damage, burning tongue, mouth??? Rossadmin May-30-01 19
             RE: Nerve damage, burning tongue, mouth??? SandyC (Guest) May-31-01 20
                 RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-01-01 21
                     RE: Nerve damage, burning tongue, mouth??? SandyC (Guest) Jun-01-01 22
                         RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-03-01 23
                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-18-01 24
                                 RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-20-01 25
                                     RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-21-01 26
                                         RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-22-01 27
                                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-23-01 28
                                             RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-24-01 29
                                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-25-01 30
                                             RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-27-01 31
                                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-28-01 32
                                             RE: Nerve damage, burning tongue, mouth??? Rossadmin Jun-28-01 33
                                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-28-01 34
                                             RE: Nerve damage, burning tongue, mouth??? Judie (Guest) Jun-29-01 35
                                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jun-30-01 36
                                             RE: Nerve damage, burning tongue, mouth??? Beth (Guest) Jul-04-01 37
                                             RE: Nerve damage, burning tongue, mouth??? SandyC. (Guest) Jul-04-01 38
                                             RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 47
                                             RE: Nerve damage, burning tongue, mouth??? dawn (Guest) Sep-01-01 42
                                             RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 43
             RE: Nerve damage, burning tongue, mouth??? katylia12 Aug-29-07 61
  RE: Nerve damage, burning tongue, mouth??? Andreas Schroll (Guest) Jul-19-01 40
     RE: Nerve damage, burning tongue, mouth??? KATRINA Sep-20-01 46
         RE: Nerve damage, burning tongue, mouth??? Roberta (Guest) Oct-09-01 52
     RE: Nerve damage, burning tongue, mouth??? richard u Aug-29-07 62
  RE: Nerve damage, burning tongue, mouth??? wend Jun-15-04 53
  RE: Nerve damage, burning tongue, mouth??? gueritasabrosa Aug-06-04 54
  RE: Nerve damage, burning tongue, mouth??? June (Brett) Aug-08-04 55
  RE: Nerve damage, burning tongue, mouth??? cocotang Jun-21-07 59
     RE: Nerve damage, burning tongue, mouth??? katylia12 Aug-29-07 60

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abby
Charter Member
Oct-26-00, 08:53 AM (CST)
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1. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   Dear June, I have burning mouth syndrome. Usually it occurs in post menopausal women who are losing taste buds due to estrogen loss. This however, is not the case for me. I'm 36, and got it after taking an antidepressant called wellbutrin. My doctors don't know what started and they blame it on emotional problems for me too. Many get it after dental work, but I did'nt. Also, my tongue does'nt burn. Its just really sore. The ridges along the top of my mouth sting very bad. One thing about bms is that the pain may be alleviated by eating. This is because it is phantom nerve pain. You have had quite a bit of trauma to your mouth. Have you given it enough time to settle down. If you would like to learn more about bms, there is an article called "The Mystery of the Burning Tongue". Type this into your search engine and it will usually come up. bms is usually a disease of exclusion. When they can't find anything else, they may call it that. But mine came out of a period of extreme panick and anxiety. It came out of bad depression. But my mouth looks perfectly normal. No signs of anything wrong. I have had it for about 9 months now. There are treatments for it, if thats what you have, so don't worry. Especially because that may not be it at all. Search burning mouth syndrome in your search engine. About 5 years ago, I had 5 cavities filled on the same day. It took that a whole year to settle down. But it eventually did. It had nothing to do with my bms. Many dentist only read a paragraph about it in dental school, so if you suspect it, you have to find an oral surgeon that knows about it. Sending prayers and love. Abby


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LL TRUESDELL@AOL.COM (Guest)
unregistered user
Dec-26-00, 08:18 PM (CST)
 
3. "RE: Nerve damage, burning tongue, mouth???"
In response to message #1
 
   ABBY,
An aching tongue,jaw along with a right earache started with me last February after dental work. I've been to the Director of Oral Surgery at OSU and he told me that the cause of this burning sensation is unknown,and there is not a permenant solution for pain relief.He said that he sees on an average of 8 patients a month with this condition. He even handed me a preprinted letter stating that BMS is classified as an "unknown condition"! I was depressed when I went to see him,but evn more depressed when I left. Prior to visitng him,I had been tested for hormone imbalance,(checking for early menopause)---negative.
Went to two ENT specialists because my earaches were unbearable. Neither could find anything wrong.Called 911 to be taken to the emergency room with a migraine so bad I thought I was having an anurism.(never had a migraine before).Did that embassing routine twice...I was told by the paramedics that I was having a panic attack...the ER doctor ran a seies of tests,gave me morphine,catscan and sent me home about five hours later.I've also tried the anti-seisure/anti-depressants with no luck.I've also had numerous blood tests for other routine diseases.

I was tested for systemic yeast---negative, an extensive and very expensive food allergy test---negative. Not allergic to any foods or anything that resembles food!).

The last and final test was the winner!!! I had a METAL/MINERAL 24HR. URINE TEST. When I reviewed the test results with my doctor,I could not believe what I saw; MERCURY POISONING.I am "off the chart" with elavated levels of mercury and nickel. My problem certainly is dental related. I am taking the neccesary steps to get myself healthy again. Slowly having my amalgams replaced while going through a detoxification program. I don't know if you have read anything about MERCURY POISONING,but our fillings are made up of 50% mercury. Mercury can cause alot of damage when fillings get old. Go to the web and key in Mercury Poisoning...you can't imagine what you'll find.

I've gone on enough for now. If you would like any other info.,I'm happy to help.

Happy Holidays,
Linda


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Sorin (Guest)
unregistered user
Apr-10-01, 08:09 AM (CST)
 
8. "RE: Nerve damage, burning tongue, mouth???"
In response to message #3
 
   Linda
I am sorry to tell you but your problem probably has nothing to do with mercury but rather seems to be a Temporo Mandibular Joint (TMJ) problem. I strongly advice that you will be checked by a TMJ specialist
Feel good


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Aldape (Guest)
unregistered user
Aug-31-01, 09:16 PM (CST)
 
41. "RE: Nerve damage, burning tongue, mouth???"
In response to message #1
 
   I too have BMS I do not know how i got it. I have had it for almost a year. I find relief by chewing gum. Not all brands of gum help the one that really helps me is Wrigley's Winterfresh. try this one first and if this brand does not work find one that works for you. I have tried other brands and the bms gets worse. For me the trick is keeping something in my mouth at all times. The smoothness of this brand of gum helps my dry burning mouth.


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KATRINA
Charter Member
Sep-20-01, 11:34 PM (CST)
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51. "RE: Nerve damage, burning tongue, mouth???"
In response to message #1
 
   WWW.GO4HOPE.COM


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richard u
Member since Nov-8-06
10 posts
Aug-29-07, 06:00 PM (CST)
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63. "RE: Nerve damage, burning tongue, mouth???"
In response to message #51
 
   >WWW.GO4HOPE.COM


no it is www.go4hope.org


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Marilyn (Guest)
unregistered user
Dec-23-00, 06:33 PM (CST)
 
2. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   June - I see your post was back in October, so possibly you aren't checking back in here?? I hope so, because I'd like to know how you are doing, and what treatments you have had? Our BMS sounds almost exactly the same. Mine started almost 2 years ago, with one upper molar crown and replacement filling in adjoining tooth. My "bite" has never been the same since that day. My teeth feel like they don't mesh together, but I know they actually do.

I have developed the bad habit of gently touching my teeth together, which makes them even more tender. (both sides!) I have also gotten a splint "night guard", but sometimes I think it actually makes me feel worse. I tend to press down on it during the night, which makes the teeth even more tender.

Talking is something I love to do, but now I dread it! I avoid telephone conversations, whereas I used to spend hours talking. Right now my daughter is visiting from out of town for the Holidays, and I want to talk, talk, talk! I have so much to say, but it leaves me miserable later. Sometimes my jaw feels like it slips out of place and causes my teeth to click together. It's almost like a spasm of some kind. If you are still out there, please write in again!


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Dade (Guest)
unregistered user
Jan-02-01, 08:31 AM (CST)
 
4. "RE: Nerve damage, burning tongue, mouth???"
In response to message #2
 
   Hello. I'm new to this site and was extremely happy to find it. All these stories are the same as the group I'm in. We have taken this a little farther with a questionnaire. Please come and check out these two sites, it'll help! www.graley.s5.com/burn.htm and www.suite101.com/discussion.cfm/women_over_50/19109/latest/2


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Sorin (Guest)
unregistered user
Apr-10-01, 08:15 AM (CST)
 
9. "RE: Nerve damage, burning tongue, mouth???"
In response to message #2
 
   Marylin, you do not have BMS. What you describe is a classic case of what is called "occlusal interference" due to the faulty crown that was placed in your mouth. the night guard will not help you because the problem is not due to "para function" during the night but rather to the faulty crown. It is well known that patients have the tendency to play with the interference.
The bright side is that your problem can be easily fixed: you need a "selective griding" adjustement by a competent dentist and/or probably also the replacement of the crown. After that you will feel like new.
Feel good


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June (Guest)
unregistered user
Apr-26-01, 09:52 PM (CST)
 
10. "RE: Nerve damage, burning tongue, mouth???"
In response to message #2
 
   Marilyn, glad I found you again. I had not checked this site for some time until today....didn't even remember I had posted. That, I blame on my condition. I have been on every site I can find....all over the place!! Can't believe I forgot to check. How are you by now? I have gone from bad to worse. My tongue continues to drive me crazy. It is soooooo sore. Sometimes it has blisters, sometimes it has a whitish coating, sometimes it is bright red, but it is ALWAYS sore. I have been treated for a yeast infection twice....did not help. I have been treated with a herpes medication...did not help. A medical dr. told me I had inflamed taste buds. An oral surgeon told me I was "sucking" on my tongue at night????? I still have a temporary, and am now with my 10th dentist, because I have severe TMJ problems, but still no one knows what is wrong with my tongue. Just today, I talked with a chiropractor who practices preventive medicine, is into nutrition, vitamins, etc. She said almost always sores in the mouth, tongue was caused by "leaky gut." But if that is true, I guess I acquired the leaky gut the day my dentist did all that work, needlessly, I will add, to my mouth. The last year has been a total nightmare. I am checking into disability retirement, which I don't want to do, because I am will take a penalty for not having enough years, plus I am not old enough....first time for that in a long time. I know what you mean about talking. I used to talk on the phone for hours. Now, when the phone rings, I shudder. I do talk to my mom often, but usually when I get off the phone, my tongue is killing me!! Let me know if you are still out there and if you have had any of your problems resolved. I will remember to check back this time.
June


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Judie (Guest)
unregistered user
Apr-27-01, 09:18 AM (CST)
 
11. "RE: Nerve damage, burning tongue, mouth???"
In response to message #10
 
   After all the doctors you have gone to, have they not tried to prescribe neurontin to you???? It, in my case) takes away the horrible feeling in your tongue and you don't even know the uncomfortable feeling until it is time to take another doesage of the pills.... I know it is horrible to become use to these medications but what is the choice except being unable to cope with the tongue........ Judie


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KATRINA
Charter Member
Sep-20-01, 11:19 PM (CST)
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44. "RE: Nerve damage, burning tongue, mouth???"
In response to message #11
 
   GO TO SITE

GO4HOPE.COM

A bms SITE


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KATRINA
Charter Member
Sep-20-01, 11:30 PM (CST)
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50. "RE: Nerve damage, burning tongue, mouth???"
In response to message #10
 
   WWW.GO4HOPE.COM

ALSO WWW.CAPSAICIN.COM LEAD YOU TO CAPSAICIN CANDY RECEIPES TO MAKE OR BUY
KATARGUE@HOME.COM----IF YOU HAVE ANY QUESTIONS


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KATRINA
Charter Member
Sep-20-01, 11:27 PM (CST)
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49. "RE: Nerve damage, burning tongue, mouth???"
In response to message #2
 
   WWW.GO4HOPE.COM


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Carole (Guest)
unregistered user
Apr-09-01, 01:50 PM (CST)
 
5. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   Its only 3 months since I "Trusted" an oral surgeon to administer a second injection Carbocaine, (first was Lidocaine)for what should have been a simple small root exraction, only this time (I've never had complications from anesthesia before)I never recovered from the numbness and prickling, worse still now the symptoms are much worse, though dentists suggest it will get better and to "wait and see"The burning now extending all over my tongue is much worse adn there is a change/loss of taste, even water tastes like metal. I have spent days researching, because no one in this area has any expertise, even dentists and neurologists I have spoken to admit this. I know I am not alone. Tony Pogrel University of San Francisco wrote a six page article which is in the Pub Med pages, at least part of it. saying it is more than often permanent. Feed back would be appreciated. There are other symptoms, too numerous to get into here. Carole


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Rossadmin
Member since Apr-21-07
1186 posts
Apr-09-01, 08:12 PM (CST)
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6. "RE: Nerve damage, burning tongue, mouth???"
In response to message #5
 
   Carole,

You have found the right site, although your post would probably be better in one of the other sections. It sounds like you have lingual nerve damage from injection, and not burning mouth syndrome. The article by Dr. Pogrel is the best one, so if you are familiar with that one you probably know more than most of your dentists.

I assume you have looked over the information on the rest of the site ( www.lingualnerve.org ).

Wish I could tell you more. I can tell you that my pain is still present, but has decreased from the degree that it was at three months, so there is room for some hope.

Ross


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KATRINA
Charter Member
Sep-20-01, 11:19 PM (CST)
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45. "RE: Nerve damage, burning tongue, mouth???"
In response to message #5
 
   GO4HOPE.COM


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KATRINA
Charter Member
Sep-20-01, 11:26 PM (CST)
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48. "RE: Nerve damage, burning tongue, mouth???"
In response to message #5
 
   WWW.GO4HOPE.COM


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Sorin (Guest)
unregistered user
Apr-10-01, 08:01 AM (CST)
 
7. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   Hi. I am a specialist in prosthodontics living in Israel. Your problem does not seems to be a nerve damage or BMS but rather a prosthodontic problem related to the crown size and morphology. By the way, the crowns will not settle and (of course whithout being aware of the exact situstion) I think that you should change the dentist.
The problem that you had with chewing the cheek is not related to alergy but also to the crown buildup. I am sure that any prosthodont will explain you that.
Feel good


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carolyn (Guest)
unregistered user
May-03-01, 08:44 PM (CST)
 
12. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   June I to am having problems with my tongue, After having some work done at the dentist..It got so bad I could not talk without my tongue feeling like it was severly burned or skin ripped off. Im going to a oral surgeon this Sat. my dentist did not know what was causing this and neither did my doctor.Until I can find the cause I got some little wax containers soften in hot cup of water and molded it on my teeth the wax came from those little fruit flavored kids drinks , my grandson drank the drink and I used the wax. You cant believe how much relief it brought me.I even sleep with it in my mouth at night. It stays in very well you just have to take it out to eat. I got mine at the dollar tree store. Maybe you would like to try it. I know how painful this can be....
carolyn


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June (Guest)
unregistered user
May-10-01, 01:41 PM (CST)
 
13. "RE: Nerve damage, burning tongue, mouth???"
In response to message #12
 
   Hi Carolyn,
I certainly know what you mean. Sometimes I just want to let my tongue hang out to try to keep it from contacting anything. I am curious....did you dentist comment, or is that you were referring to as your doctor? Please let me know what you learn from the oral surgeon.
Funny, that you mention the wax. I got some "dental" wax that is used for braces, but I can't get it to stay in place. I'm not sure I know what kind of wax you are talking about....can you explain further? I would like to try it.
I really do hope you find a solution. I am now seeing my 10th dr. in the "dental" field. I have seen general dentists, prothodontists, oral surgeons, endodontists. I finally had to go out of state. By the way, I don't know where you live, but I had no luck in getting anyone to address the problem. All the doctors would either call my "original" dentist, who caused all this and refuses to acknowledge it, or would immediately start defending him, whether they knew him or not. What a network doctors have!! I have spent close to $10,000 of my own money, and am looking at full-mouth reconstruction at a minimum of $50,000. My insurance, so far, has not covered a thing. I have so many things wrong, and I am not even convinced that the reconstruction will relieve the problem with my tongue. As I said in another post, I STILL think I have some sort of nerve damage.
Guess you didn't need to hear all this. At any rate, I would appreciate know what you find out. Hope it's good.
June



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SandyC
Charter Member
May-20-01, 03:16 PM (CST)
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14. "RE: Nerve damage, burning tongue, mouth???"
In response to message #13
 
   I am new to this site, but I have had the burning sensation on the right side of my tongue for two years now. It started after having a tooth removed. I have been to an oral surgeon, neurologist, an Ear, Nose, and Throat doctor, and my family doctor. I have gotten no relief. I have tried steroids, a medication prescribed by the neurologist, the Sonic Care toothbrush, chewing gum, and I even made the hot pepper candy (the recipe I got at this website) to no avail. I am desperate! Help!!


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Rossadmin
Member since Apr-21-07
1186 posts
May-20-01, 04:38 PM (CST)
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15. "RE: Nerve damage, burning tongue, mouth???"
In response to message #14
 
   Sandy,

Did the damage to your lingual nerve occur with the tooth extraction, or just around the same time? Which tooth was extracted?

You posted this in the Burning Mouth Syndrome area, which is why I am trying to clarify. In Burning Mouth Syndrome, there is no known injury that results in the burning mouth, and also both sides of the tongue are usually involved.

With lingual nerve damage from tooth extraction, usually only one half of the tongue is involved, and it starts at the time of the extraction (ie. - is due to an injury at the time of the extraction).

Assuming that only 1 half of your tongue is damaged, and that it started with a tooth extraction, then what you have is lingual nerve damage. If so, then you should read the section of my web site that deals with that: http://www.sciential.net/surgical_etiologies.htm

Half my tongue burns, so I can relate to your problem. Have you tried any of the drug therapies? In general, I try to stay off of drugs, but some of them are effective in some people. The current drug of choice for what you probably have (neuropathic pain) is Neurontin (Gabapentin). This is a relatively new drug, but seems to be the favorite. Let me know if you need more information about this.

With neuropathic pain, the usual pain relievers will not help. Steroids are usually only thought to be helpful right after the injury, to try to reduce the chances of permanent injury.

Also, there are some experts who would consider surgical exploration to see if scar tissue is the source of the nerve irritation, or if there is a neuroma explaining the symptoms.

Hope this helps.

Ross


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SandyC (Guest)
unregistered user
May-20-01, 07:05 PM (CST)
 
16. "RE: Nerve damage, burning tongue, mouth???"
In response to message #15
 
   Ross, thanks for responding so soon. It's good to know I have a support system. I guess I was at the wrong site, because my tongue's burning sensation is only on the right side of my tongue and it did occur right after a tooth extraction. I printed your reply and will go over what you wrote. Thanks again.


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Jayde
Member since Dec-5-06
5 posts
Dec-05-06, 03:39 PM (CST)
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57. "RE: Nerve damage, burning tongue, mouth???"
In response to message #15
 
   Ross, I am somewhat like Sandy. At first I thought I had lingual nerve damage because the burning sensation started only a few weeks after I had a molar extracted. Now that I read about burning mouth syndrome, I'm beginning to wonder if that is my problem. My tongue is painful only on the right side -- it doesn't keep me awake at nights and seems fine when I first get out of bed. By late morning, the burning sensation starts -- first on the tongue and then by mid day my entire mouth feels like I am holding a bunch of hot peppers in my mouth. I continually sip on ice water which helps for about 2 minutes. Sometimes I feel like the burning sensation is actually "creeping" down my throat! And usually my lips feel warm and dry (like when you have chapped lips). I've had two fillings replaced because my dentist thought they might be jagging my tongue and causing the problem. So far, nothing has helped. Any ideas? I hate to contact my MD because he loves to push any drug down your throat and I'd prefer not to do that. Thanks for any help you can offer.
Jayde


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blue05
Member since Dec-17-06
4 posts
Dec-17-06, 01:39 PM (CST)
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58. "RE: Nerve damage, burning tongue, mouth???"
In response to message #57
 
   I have had this trouble for maybe 10 years or so. Began at the tip of my tongue, like so many here. I thought I had irritated it on the back of my front teeth, so asked the dentist to smooth them. No help, obviously!

Through the years, there are times when it is terrible and times when it is better, but it's always there. I have a geographic tongue, too, although that may not be related.

I have come to believe that possibly I suffered nerve damage during the course of a viral sore throat. The trouble did begin after a severe sore throat, and was considerably worse many years later, after another.

Certain foods are easier to tolerate than others, but I don't think foods are the cause. Any acids, including all SUGARS, really cause discomfort. Most often tolerable in a.m. worsening as day progresses. I am a 63 year old Female; I first became allergic to lipstick in my 40s. Then this trouble began maybe 10 years later; nothing makes it better.

Besides the pain, which can bring tears on many occasions (although I have learned to have a small glass of milk at table with me, which helps to rinse acids), my tongue seems to be moving most of the time. The inside of my mouth, most esp. palate and inside lips also burns. I also experience the feeling of having crumbs, sand, sawdust or something similar in my mouth at all times. It's nearly impossible to keep my tongue from "exploring" even though I do keep my mouth as clean as is possible. I "know" there is nothing in there, but my tongue doesn't know. My husband finds seeing my mouth moving so much of the time, especially in public, an embarrassment. Wish I could change it, but so far no luck.

Does anyone here think they may have had nerve damage from a virus? What about the sensation of something in your mouth?

I sure am glad I found this forum; happy holidays!
Roberta


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kay simpson (Guest)
unregistered user
Jul-04-01, 08:57 PM (CST)
 
39. "RE: Nerve damage, burning tongue, mouth???"
In response to message #13
 
   Wow June you said it all.. I have had the same problem and have spent sooooo much $$$$. The doctors just don't have a clue.
I've been the best and the worst...I've had my teeth ground down many times hoping it would help...But nothing. I have not tried medicine. Mine was cause from TMJ. The only thing left is braces.


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sheila
unregistered user
Oct-29-05, 06:25 PM (CST)
 
56. "RE: Nerve damage, burning tongue, mouth???"
In response to message #12
 
   just wondering if you ever found anything to relieve burning tongue/mouth??? I'm miserable with mine. my email address is pooki@softbase.com


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bmwright
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May-30-01, 01:30 PM (CST)
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17. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   http://www.jmamis@newhavenadvocate.com/articles/tongue1.html

check this site. I finally have hope for an ending to this nightmare. I am on my way to the doctor right now. Now I have the challenge of getting him to read what I have read. This drug clonazepam has been mentioned numerous times and the theory behind why it works makes sense.

If you still suffer....write back and I'll let you know what happens with the new drug.

-Bridgette


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SandyC (Guest)
unregistered user
May-30-01, 03:30 PM (CST)
 
18. "RE: Nerve damage, burning tongue, mouth???"
In response to message #17
 
   I just read your message about the article Riddle of the Burning Tongue and the work done by Dr. Bartoshuk. I am very excited about the Clonazepam. I plan to talk to my doctorabout it and I wlill take along a copy of the article. Thanks


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Rossadmin
Member since Apr-21-07
1186 posts
May-30-01, 09:06 PM (CST)
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19. "RE: Nerve damage, burning tongue, mouth???"
In response to message #18
 
   Clonazepam is also used for those with lingual nerve injuries that result in pain (some similar symptoms to burning mouth syndrom, with with a known cause). I found it to be pretty effective, but I only used it at night. I used it until last August. I did think that I had some withdrawal symptoms when I decided to stop it.

All of the treatments that people have tried, and of which I know about are at:

http://www.sciential.net/Treatment%20options.shtml

Ross

Ross


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SandyC (Guest)
unregistered user
May-31-01, 04:28 PM (CST)
 
20. "RE: Nerve damage, burning tongue, mouth???"
In response to message #19
 
   Ross, I wrote an e-mail to Dr. Linda Bartoshuk. She is the doctor who did the research on clonazepam. She responded to my e-mail. She said to discuss this with my physician and if he agrees to start on a very low dose (0.25 mg per day). It was nice to get a response from her. It is also nice that you are trying to help me out. Thanks


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Rossadmin
Member since Apr-21-07
1186 posts
Jun-01-01, 04:56 PM (CST)
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21. "RE: Nerve damage, burning tongue, mouth???"
In response to message #20
 
   That sounds quite reasonable.

From your history, did she think your diagnosis was Burning Mouth Syndrome?

Ross


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SandyC (Guest)
unregistered user
Jun-01-01, 07:34 PM (CST)
 
22. "RE: Nerve damage, burning tongue, mouth???"
In response to message #21
 
   She didn't say what she thought it was. I wrote to her that the right side of my tongue began to have the burning sensation after numerous injection for dental work. She wrote that she attached some info on burning mouth syndrome that I might find interesting . (I wasn't able to bring up the information.) She also mentioned the low dose of clonazepam. She said that she would love to hear how I do.


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Rossadmin
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1186 posts
Jun-03-01, 07:31 PM (CST)
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23. "RE: Nerve damage, burning tongue, mouth???"
In response to message #22
 
   Thanks for the reply.

I have had email contact with her before, and may have to discuss this with her directly.

Either way, the clonazepam is a treatment used for either case.

Ross


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SandyC. (Guest)
unregistered user
Jun-18-01, 04:48 PM (CST)
 
24. "RE: Nerve damage, burning tongue, mouth???"
In response to message #23
 
   Ross, I just wanted you to know that I went to my doctor today. He prescribed Clonazepam as described in Doctor Bartoshuk's research. I really hope I notice some relief. I will let you know.


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Rossadmin
Member since Apr-21-07
1186 posts
Jun-20-01, 08:45 PM (CST)
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25. "RE: Nerve damage, burning tongue, mouth???"
In response to message #24
 
   It did work for me. I only took at bedtime, I believe the dose was .25mg (half a tab).

There was a discussion on another forum where people are getting relief using Ambien, which is usually prescribed for insomnia.

Anyway, I'd be interested in your response to clonazepam.

Ross


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SandyC. (Guest)
unregistered user
Jun-21-01, 06:39 AM (CST)
 
26. "RE: Nerve damage, burning tongue, mouth???"
In response to message #25
 
   How long did it take to notice some improvement? I just took my fourth 1/2 tablet. I don't notice much difference yet. Are you still taking it? Is it a lifelong maintaince medication, or will I be able to stop taking it and have relief?


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Rossadmin
Member since Apr-21-07
1186 posts
Jun-22-01, 08:41 PM (CST)
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27. "RE: Nerve damage, burning tongue, mouth???"
In response to message #26
 
   I am no longer on it.

The effect was fairly quick for me, and only lasted for a few hours. I only took it at bedtime, so I did not use it for relief during the day.

If you do not notice any effect by now, I suspect this drug is not going to help you, but I only have my personal experience to base this opinion on.

Have you tried Neurontin?

Ross


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SandyC. (Guest)
unregistered user
Jun-23-01, 07:09 AM (CST)
 
28. "RE: Nerve damage, burning tongue, mouth???"
In response to message #27
 
   I really had hoped that Clonazapam would help! I still am not getting any relief. I did try Tegretol. I had an adverse reaction to it. My doctor told me that if I couldn't tolerate that drug, I would really have trouble with Neurontin. He said it causes more side affects than Tegretol.

What are you doing for the burning sensation?


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Rossadmin
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1186 posts
Jun-24-01, 06:41 PM (CST)
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29. "RE: Nerve damage, burning tongue, mouth???"
In response to message #28
 
   I am either living with it, or trying some of the capsaicin candies. Chewing gum or using breath mints to try to distract from the pain is of some help.

What type of reaction did you have to Tegretol?

I would not give up on Neurontin so quickly. Since you are sensitive to medications, if you do try it I would suggest starting at 100 mg three times a day, and ramping up slowly. I eventually got up to 900 mg three times a day. Neurontin comes in both 100 mg and 300 mg caps.

Ross


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SandyC. (Guest)
unregistered user
Jun-25-01, 08:45 AM (CST)
 
30. "RE: Nerve damage, burning tongue, mouth???"
In response to message #29
 
   Where do you get the capsaicin candy? I made some, but that was a pain! It didn't seem to help much. The tegretol gave me muscle spasms in my left hand and leg. Wow that sounds like a lot of neurontin you were taking. How long have you had this problem? Is there a chance the nerve in that part of my tongue will die? I want to be done with this burning tongue! Thanks for your replies.


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Rossadmin
Member since Apr-21-07
1186 posts
Jun-27-01, 09:00 PM (CST)
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31. "RE: Nerve damage, burning tongue, mouth???"
In response to message #30
 
   Sandy,

If eating hot/spicy food does not help "hide" the burning sensation for you, then I would not bother with the Capsaicin candy. If you do need it, there is a company that makes it and it is in the treatment area of the web site ( www.lingualnerve.org ).

I was injured in November of 1999.

When a nerve is cut, the distal portion will die and eventually even the sheath will resorb if the nerve does not regrow. However the burning pain you have can be caused by the damage to the nerve and may not go away. Just because a nerve is causing pain does not mean that it is more subject to death. There has been some research on trying to get just the pain producing nerves to die, but it is a ways off.

The theory behind the capsaicin candies, is that if you use them over a period of time, they theoretically deplete the pain producing nerves of Substance P, which is the neurotransmitter for pain. I am not sure that this theory has been proven, but the neurotransmission properties of Substance P are established.

That does not help you much right now.

I would encourage you to try Neurontin. It is currently the most popular drug for treating this type of pain.

Ross


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SandyC. (Guest)
unregistered user
Jun-28-01, 05:40 AM (CST)
 
32. "RE: Nerve damage, burning tongue, mouth???"
In response to message #31
 
   Thank you for all of your help. It is really nice to have someone who is knowledgeable and is trying to help me find a solution to this problem. I have two doctors in the family and they have told me just to deal with the burning sensation. They do not understand how constant and irritating this problem is.


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Rossadmin
Member since Apr-21-07
1186 posts
Jun-28-01, 04:31 PM (CST)
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33. "RE: Nerve damage, burning tongue, mouth???"
In response to message #32
 
   Agree that there is a lack of understanding about the intensity of these symptoms among providers. Their advice to just live with it is reasonable based on no good treatment at this time, but does not recognize the magnitude of the problem in many of us.

Ross


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SandyC. (Guest)
unregistered user
Jun-28-01, 04:50 PM (CST)
 
34. "RE: Nerve damage, burning tongue, mouth???"
In response to message #33
 
   I ordered the hot pepper candy. It should be here next week. I did have a prescription for neurontin that I never had filled. I decided to get it filled today. I will let you know if either the candy or neurontin help.


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Judie (Guest)
unregistered user
Jun-29-01, 09:55 AM (CST)
 
35. "RE: Nerve damage, burning tongue, mouth???"
In response to message #34
 
  
Sandy, I have been taking neurontin (2700 milligrams a day) three pills every five hours that takes the burning and numb large feeling away and lets you function normally untill you realize it is time to take another three pills.. Yes, I hate taking the medication but taking the option of surgery and maybe turning out worse I will continue to take it untill a 100% success of surgery is inevitable..... Let us know how the neurontin does for you and good luck with it........


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SandyC. (Guest)
unregistered user
Jun-30-01, 12:18 PM (CST)
 
36. "RE: Nerve damage, burning tongue, mouth???"
In response to message #35
 
   Judie, Thanks for your response and encouragement. My prescription is for one 100 mg capsule at bedtime. That sure doesn't seem like much compared to what you are taking. I will let you know if I notice any improvement.


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Beth (Guest)
unregistered user
Jul-04-01, 03:09 PM (CST)
 
37. "RE: Nerve damage, burning tongue, mouth???"
In response to message #36
 
   Hi...been reading for days on this subject. I have already made the rounds of internist, ENT, and nothing. I am supposed to find an oral surgeon now...it sounds to me that I have BMS. I am hoping to get a referral from Dr. Linda Bartochuk as I live in Ct. perhaps she can refer me to someone who understands this problem. It is awful.I have had it for 6 weeks and it is making me nuts.If so many people have had it, they why hasn't anyone heard of it?


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SandyC. (Guest)
unregistered user
Jul-04-01, 04:29 PM (CST)
 
38. "RE: Nerve damage, burning tongue, mouth???"
In response to message #37
 
   Beth, I don't want to alarm you, but I have had this problem since June of 1999. It has been bothering me ever since I had lots of injections for dental work. I have been to every kind of doctor, but have gotten no relief. If you get any help please let us know. I took the name of the drug Dr. Bartochuk suggested to my doctor. He prescribed it, but it really didn't help me. Maybe you'll be one of the ones it helps. Good luck!


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KATRINA
Charter Member
Sep-20-01, 11:23 PM (CST)
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47. "RE: Nerve damage, burning tongue, mouth???"
In response to message #38
 
   WWW.GO4HOPE.COM


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dawn (Guest)
unregistered user
Sep-01-01, 01:07 PM (CST)
 
42. "RE: Nerve damage, burning tongue, mouth???"
In response to message #34
 
   where can I get the hot pepper candy that is mentioned by several people. Like everyone else, I've been all through everything, am currently on clonazapam, nortriptilene, and diazapam (valium). Nothing makes the pain go away except sleep. It seems like it's getting worse instead of better. I am afraid to take any more drugs...they make me so sleepy I can hardly work or function. I have no energy. Please will someone e-mail me at dawnr@centurytel.net to tell me where to order the hot pepper candy. I'll try anything.


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KATRINA
Charter Member
Sep-20-01, 11:11 PM (CST)
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43. "RE: Nerve damage, burning tongue, mouth???"
In response to message #42
 
   EMAIL ME-------I JUST--TONIGHT FOUND THE CANDY SITE---I EMAILED IT TO MYSELF-SO IT IS WAITING FOR M RIN MY BOX------I'M NOT VERY GOOD AT THIS COMPUTER THING----I AM SEARCHING THE WORLD TO HELP SOMEONE i LOVE----
i'VE GOT A CANDY RECEIPE YOU CAN MAKE----AS WELL AS ONE YOU CAN ORDER AND HAVE SENT TO YOUR DOORSTEP

MY ADDRESS IS
KATARGUE@HOME.COM


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katylia12
Member since Mar-6-07
16 posts
Aug-29-07, 05:00 PM (CST)
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61. "RE: Nerve damage, burning tongue, mouth???"
In response to message #19
 
   Hi Ross- I noticed your comment about the Klonopin. I've been on that for my pain for quite some time and it still works just as well as many other strong pain pills. The only downside I noticed is it makes me very sleepy, but it does work. I have an RX to take 1 three times a day, but there's no way I could and still be able to function. I think if I took it like it's prescribed it would cause me to build up a tolerance level faster and then I'd probably have withdraw symptoms. I don't know if you still take Klonopin but if so you might try taking it less often, then your tolerance level won't be defeated, and you'll get pain relief. That's true with all these pain meds unforntunately. Hope your doing better.
Kat


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Andreas Schroll (Guest)
unregistered user
Jul-19-01, 07:52 AM (CST)
 
40. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   Please come to www.go4hope.com - Spread the word...

Best Reagrds
Andreas Schroll


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KATRINA
Charter Member
Sep-20-01, 11:21 PM (CST)
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46. "RE: Nerve damage, burning tongue, mouth???"
In response to message #40
 
   GUESS WE KEEP ENDING UP AT ALL THE RIGHT SPOTS

GETTIN THE WORD OUT A


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Roberta (Guest)
unregistered user
Oct-09-01, 10:06 AM (CST)
 
52. "RE: Nerve damage, burning tongue, mouth???"
In response to message #46
 
   I have had three episodes of what seems to be BMS and have started on the adventure of finding the best way to deal with this problem. Have you ever heard of "episodes" of BMS that resolve on there own? I have this burning sensation on the roof of my mouth that lasts for about three to four weeks then disappears suddenly, only to return a couple of months later. Does this sound like BMS? I have also been perscribed neurontin but am holding off starting the medication to see if this episode resolves by itself. Is it common for the burning sensation to come and go for periods of time?


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richard u
Member since Nov-8-06
10 posts
Aug-29-07, 05:53 PM (CST)
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62. "RE: Nerve damage, burning tongue, mouth???"
In response to message #40
 
   >Please come to www.go4hope.com - Spread the word...
>
>Best Reagrds
>Andreas Schroll


That's www.go4hope.org


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wend
unregistered user
Jun-15-04, 09:44 AM (CST)
 
53. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   LAST EDITED ON Jun-15-04 AT 09:51 AM (CST)
 
June, hello,
I see you posted this message in 2000, so wondered how you are now?
I had my 2 lower wisdom teeth taken out under local & general anaesthetic 2 and a half weeks ago, and have numbness and pain of a electric stinging kind in my left side of mouth, chin, lip, & all over my tongue. My tongue is much like you describe; did you have an injection, as I wondered if they may've put it into the lingual nerve, in both cases.
If you are better now how long did it take? And if not, have you managed to do anything to give you more peace? eg treatment and litigation.


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gueritasabrosa
Member since Aug-6-04
2 posts
Aug-06-04, 05:58 PM (CST)
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54. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   oh, god....i feel the same way....i want to yank all of the back teeth out of my mouth because my tongue hurts so bad and the teeth only heighten that sensation......my tongue feels like it can't fit in my mouth any longer..........is there no end?


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June (Brett)
unregistered user
Aug-08-04, 08:01 PM (CST)
 
55. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
   As one June to another, I have had the same problems as you! After dental work 14 years ago I still suffer!! My palate is now involved. I find the most relief from a Dental plate, something like the ones they use for Bruxism, which I wear over my top teeth. It helps enormously. In the past two years I have added a new dimension to my discomfort, strong prickly sensations in my legs that only give releif when I walk. Havn't found nayone to explain this. You can email me directly at junebrett@rogers.com if you wish. Fellow June


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cocotang
Member since Jun-21-07
3 posts
Jun-21-07, 01:44 PM (CST)
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59. "RE: Nerve damage, burning tongue, mouth???"
In response to message #0
 
  
I have been suffering from BMS for 4 years now. Like most of you, I have seen many doctors and tried many meds. I am presently taking 4 different kinds. The irritation and burning started the day after I had a tooth removed. The tooth was britle and broken into small pieces down into my bone. The dentist drilled for more than one hour in order to remove all the pieces. In almost 10 years, this was the first time I accepted the freezing. Normally, I just took the pain because I had had a bad experience with the freezing earlier in life. When the freezing went away the next day, the pain started. I do not think this is a coincidence. I was only 36, I was very happy with my life, I did not experience any sadness before this and all of my vitamin counts were normal. I did find out later however that a major nerve goes right near the area (bottom right, near the front) where I had the tooth removal. I am certain that the dentist hit that nerve and this trigered the BMS.
I have since seen so many doctors, and the people in the dental field do not want to admit any wrongdoing. So I am the one left to suffer with this condition probably for the rest of my life.
The first year is kind of a blurr to me. I spent much of my time beneath covers crying and telling my kids not to talk to me because it hurt too much to answer. BMS took away the quality of life I once had with my husband and two kids. Beeing a school teacher and having to talk a lot everyday makes it very hard to live with. If I could, I would have left my job 3 years ago and turned into a couch potato. I can tolerate the pain when I don't need to speak much. Does talking affect your BMS? I havn't read anything yet regarding this issue. Also, I find that certain alcohols (although it helps while you are drinking them) make the pain worst the next day. I guess that's the yeast in the alcohol, especially in beer. I have tried so many home remedies, medications and I even tried a hypnotist to no avail. I want my life back, I am tired of chewing gum, of yelling at my kids and of hiding in a corner not to be bothered. I am getting better at living with it but I am not sure if a bit of the pain has left or if I am simply getting use to it. I worry about the quality of life I will have when I am 60 and older. Will I be able to tolerate this darn pain forever.
Any suggestions are appreciated. I pray for all of you and pray that the medical field will take this issue more seriously and come up with a cure. I have tried sending messages to talk shows like Oprah and Montel. If we all do this, maybe they will look into it and find the most qualified doctor out there to help us. Why don't we try it.
Sending off.
Cocotang


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katylia12
Member since Mar-6-07
16 posts
Aug-29-07, 04:49 PM (CST)
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60. "RE: Nerve damage, burning tongue, mouth???"
In response to message #59
 
   Hi There- Sorry to here about your pain. My story is under the "Pain after Hysterectomy. Have you read anything on glossopharyngeal neuralgia? It's seems though most the people with this pain had some kind of dental work and then experienced the pain. I had a root canal 1 year before I had a hysterectomy. When I awoke from my hysterectomy surgery is when I immediately had severe burning in throat, back of tongue and left ear. I figured it was from surgery. After 4 years with pain I was diagnosed with glossopharyngeal neuralgia then having 3 brain surgeries, none of which help. I notice many on this site mentioning anxiety causing pain, but it's common when we have anxiety and nerve damage, the pain will intensify, when we experience any kind of anxiety. My pain doctor told me that anxiety isn't the cause of the pain but just makes it worse. I sometimes think when I begin to get the pain is when I all of a sudden began to worry causing my pain to become worse. It's like a viscious circle. I wish there were more people aware of this problem and there was real answers. You might try visiting the site of Dr. Peter Janetta, who invented the micro surgery to correct Glossopharyngeal Neuralgia. I'm not convinced that everyone on this site has pain due to dental work or if it's not something else, but I'd really like to find out what it is. Clonopin is the medication that helps with my pain, they say it's a neurotransmitter and that's why it works. It's also a anti-seizure medication.
Hope you can find some relief for your pain, regular pain meds do not do much. I've been on many, but now on Methadone which has worked for the past 3 months very well, but I'm now building up tolerance to it which I knew I would. I thank God of the 3 months of being close to pain free. I'd still have break through pain, but not as constant as it was or is beginning to be again. Each of us needs to find the right recipe for them, until someone comes up with a treatment that works. Like I said I'm not sure about this "Burning Mouth Syndrome" as a diagnosis. Some of us have same pain but not cause by dental work. Whoever discovered that diagnosis is basically saying "your mouth is having burning pain, I'm not sure why, but I'll call it a syndrome" I'm with you about Ophrah, she has Dr. Oz on quite a bit, I'd love to know if he knows anything about this pain?
Good Luck and keep in touch!
Kat


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