Thank you for the reply. don't want to sound like a broken record. But this is a very strange disorder. The way it intensifies
throughout the day. Some relief in the morning only to repeat
the same.

Again, it is hard to buy the stress theory, because I could be
resting all day. Still follows the same pattern.

Does anyone have some opinion or information on why this syndrome behaves the way it does?

Thank you,

Relicman

LUV J

Chris

Hi! John Relicman here,

Like always, I'm sorry to hear of another case. Yes, everything you have mentioned is very typical of BMS. Sooo typical,it is disturbing. When I open my eyes in the morning, I have about 45 minutes of peace before it kicks in. Brushing does not really seem to make it worse, although eating can set it in motion. but the time factor seems to play a big part.

Nerve Damage seems to run this uncanny pattern. This is what, it
is all about.

John

Like always it is good to hear from you all. I have started
Clonazepam recently. I have to say so far it has calmed the sensation
to a bearable state. As of now, the sides of my tongue are not
BURNING like rock salt.

This week has been a very bad mouth week.I tell my wife when I'm irritable...I'm having a bad mouth day. Do they really understand? most likely not. But we can't blame them if they don't experience it.

Honestly, I would not wish this syndrome on my worst enemy.

But is comforting to know that this is a reconized disorder
and maybe some day we all can be set free from this pain.

Talk soon,

Relicman

Relicman

J

Hi Denise,

Why do a b12 mouth wash of b12? Maybe you are deficient in vitamin b12 and need it?

Hello to all. Would like to ask. If anyone, besides the burning
and salty tongue etc. Have a sensation of grit or particles on
the tongue.

I have mentioned the many annoying (to say the least)
sensations that I have.

This sensation of particles & grit is equally painful and dis-
turbing it's own way. Constanly trying to scrap/remove this sensation
with my front teeth. I guess this is a normal reaction to sensing something abnormal on the tongue. Feels like I'm constantly swallowing bits & pieces of my tongue.

At this point, nothing surprises me.

Relicman

This is really the pits, Relicman. I hope you come back and find me and talk to me. So far, this forum isn't very active, and I need someone who understands. Thanks for listening! I will try to check a couple of times each day, looking for a live human! (I am smiling!)

Roberta

Are you still out there somewhere? please leave post or email
me: Johnrelicman@aol.com

I do not have burning mouth syndrome but instead a chemically burned nerve. My doctor had given me a gel that was compounded to have various nerve medications (anti-depressants and anti-seizure ones that help with nerve pain). I had a couple of days of diminished pain after I started putting my gel on my lip and on the inside of my chin. I was told by my doctor not to put it inside my mouth. I was wondering if this type of mouthwash would help the burning pain to atleast lessen. Did you use it for burning or just numbness?

Thanks.

Thank you Denise. I am willing to try anything at this point. I have been taking B-complex lately.

I can't say that I feel better, but will inform if I do.

Thank you.

Relicman

What about side effects with the Lyrica?

Thanks to all,

Honest responses are always appreciated. Again, I'm sorry for all of us. God only knows how one can be literally annoyed to death.

BMS is the Syndrome that will take one to the breaking point. Almost like hell is upon us. Wants us to live with massive disturbance. Sometimes I feel guilty for complaining about a disorder that is not Fatal?.. I should appreciate life and others who are worse off..God bless them too. Most say, It could be worse..you could have cancer. Cancer??..They seem to be making good progress these days for cancer victoms, at least many are on top of it.

It is those rare problems or unknown, many will suffer for a lifetime and never find relief. Again, I'm sorry for us. I'm always here for you all. Certainally I'm no role model for most. I'm just a man.

These days I call my BMS,.. well, this week would make more sense
since it changes all the time. How about this one.. "DRAGON SKIN TONGUE", with burning like HOT PEPPER, SANDPAPER TONGUE when it feels better...Better? when the heck does it ever feel better anyway??
I'm not able to describe what a better day really is. If I even
have one?.. It would be just be different days, better than nothing
if you know what I mean.

EAT AND SLEEP IS WHAT A TRUE BMS SUFFERER LOOKS FORWARD TO.

what a life huh?

Change is always good. At least for BMS sufferers.

Relicman, the only man in America with BMS this bad.

Don't know if anyone has heard of this, but Lipoic acid is emerging as a promising treatment for this condition. I am just beginning to try this approach...perhaps you should also look into it. Basically it's a strong antioxident that has also been used to treat diabetic neuropathy. Give it a shot? One word of advice, go for the R+ ALA...many stores just sell the 50/50 split R+/S- lipoic acid, which is half natural, half synthetic.

Anyway, does anyone else have any small red lines or bumps in areas of their tongue with this condition? Not ulcers or anything, just red spots?