I am coming up on a year of having this awful condition.
It began on a trip to Florida where I was taking a course of antibiotics for bronchitis and staying at a hotel that began construction in their atrium...where I am sure tons of fungi was being dug up. On my return home, my tongue was painful and coated, so I was treated for thrush. It felt better for a while, but then I began getting lesions on my tongue. I was given another course of antifungals and things didn't get better this time. I went to my dentist, who changed some older crown for me. No difference.
I went to my ENT who said it was GERD. Put on Prevacid. NO difference. What happened then was I began to get a very salty taste in my mouth and it would feel irritated and burned, like I was chewing rock salt..
My PH was fine. So they began treating me with Valtrex thinking it might be shingles. I thought I felt some relief for a short time, but then it returned full blast.
I went to an oral pathologist who diagnosed me with BMS and said that I probably had some nerve damage from the original infection and I had too much stress in my life. Duh, my mouth feels like it's on fire !!
He prescribed Clonopin Lozenges which I let melt and then spit out.
I thought that gave me some relief, but it didn't last.

I went to three homeopathic doctors and tried different supplements.
I went to a neurologist who did an MRI (negative) and he also said I was under too much stress. He wanted me to take Lyrica, but I could not tolerate it. He then gave me samples of Lexapro for anxiety and depression, but I have not taken it yet.
I don't want to start something I can't stop..but I am about at my wits end...We're talking about the chicken or the egg here...Am I anxious and depressed because of the BMS or visa versa....I guess at this point it doesn't matter...
But I have done much research on the internet.

I had and endoscope and colonoscopy (negative) but am taking Zantac.
From what I have gathered, it BMS is complex and needs
to be looked at from all angles because different things feed into it.
It does seem that for me is is underlying nerve damage brought on by the infection, exacerbated by stress and acid reflux.
So I am on a quest to figure the combination of treatments that might work.

I am having a night guard made, will continue some form of Gerd treatment, continue the Clonopin swish to settle the nerves, and perhaps, try the Lexpapro.

Oh, did I tell you I am also post menopausal.....
Yikes, seems as if I have all the right (or wrong) combinations to create these symptoms....but I will not give up and I know i will find the answer.....
thanks for letting me get this out !!

I am trying find some people with this awful condition to talk to and trade ideal with of thing that might help or things they have heard might help.
I have had burning mouth for 1 1/2 years have been to many docs still need to see a few more. I am on nuerontin for pain it seems to help but then it comes on stronger and I have to up my dosage.
I am on the search for a doc that is educated in this conditon and can help me. In the mean time I am praying that God will take it away or lead me to the right coarse of action. Hang in there.

Sherri

I am better, I do not whine as much. The only problem is I have gained 25 lbs since I went on the medication, I think it slowed down my metabolism, but I can live with a little weight, the burning I cannot live with.

You will find the right combination of things to do that works for you. There is a very good article in the Merck Manual about BMS and it describes almost everything that can cause it and it helped me to elimnate certain foods and products.

Take care and remember you are not alone, there are more of us out there that are feeling or have felt your pain.