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Lingual and Inferior Alveolar Nerve Damage Discussion Site

Subject: "Some recovery but the game is still on!"     Previous Topic | Next Topic
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janis
Member since Mar-3-09
5 posts
Mar-03-09, 04:42 AM (CST)
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"Some recovery but the game is still on!"
 
   Hej everyone,

i am not from the U.S., actually from Germany but living in Sweden for over 6 month now. So not a native speaker.

I want to add my story too and what progress I made so far. It took me some time to understand whats actually wrong although I am still searching some answers.

I feel a strong commitment for anyone going this dark and lonely road. I am still on it, although i partially made it through.

My story so far:

It all started with a new filling. The tooth felt somehow soft and not that tight anymore. Got some pain after two weeks and already felt some pain at the chin and down in the right jaw.

The pain got more and i got a root canal treatment. Short after the denist removed the root an electric shock ran all over my face (i feel a burning sensation ever since). I can not remember anymore if the first denist hit the nerv or not, because i went to so much pain... and just can't remember.

After that the tooth was treated several times but without sucess. Finally i got it removed as the only option.

Now the recovery story:

The tooth was removed on 3rd oct 08 (so round about 5 month now). I had really bad pain (burning, sticking) in the chin and the lower lip. Half my face (side with the tooth) was burning constantly incld. my gum and other teeth. I could hardly open my mouth and speak. Smiling every movement caused pain and burning. It was just terrible, but whom do i tell .

My denists said i should just wait. Funny guys i thought...

The situation today:

I am feeling better. My lip and chin stopped burning although they are still hypersensitive. I feel a sticky sensation when I touch my chin, after shaving or when I talk a lot. The area where my tooth was feels still some how swollen. I feel pain in the area or in the tooth behind the when i touch it. My face is still some what burning or hypersensitive. But i think it really got better and the burning area got smaller. I would say, I recovered 70% to date, but its really day to day depended.

Right now i am taking only 2x 75mg Lyrica and occationally pain killers (for the feeling not that they are really making a big difference). It is ok when i have good days, on bad days i could use more.

What i found out and helped.

- My pain is very much influenced by my physical condition. A cold or a flu feels like hell and my pain comes back for some days.

- Sleep. I definitly have more pain when i sleep to little. There is a definite connection.

- Stress. Stress goes on the nerves and mine are hypersensitive... guess what.

- Alc. Red Wine, Beer etc. is the best pain killer for me. Two glasses and I feel almost cured. Better than all these pills.

- Valeria in high doses help me sleep.

- Taking a shower. Thats a real rocker. I do not feel any pain under the shower, isn't that crazy?

- Diclofenac. Basic pain killers does not work for nerv pain. Although diclofenac definitly shows slight effects in my case.

- Anger & Fear management. Fear and anger comes on bad days. On those days I tell me, it will go away again. Thats really hard some time.


To day i can't say wether it was the aveolar nerv that was hit or just a nerv inflammation. But it is taking long...


I would be interested to know if anyone also have face burning in connection with a dental treatment?

"Wenn du denkst es geht nicht mehr kommt irgendwo ein Lichtlein her..."

Its german and says: "If you think you canīt stand it anymore... a small light will come to you and drive you further."

/Janis


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  Subject     Author     Message Date     ID  
  More progress towards my recovery! Bob Apr-04-09 1
     RE: More progress towards my recovery! charlottefr Apr-05-09 3
     RE: More progress towards my recovery! sgdaus2007 Apr-07-09 8
  RE: Some recovery but the game is still on! charlottefr Apr-05-09 2
     RE: Some recovery but the game is still on! Dr B Apr-06-09 4
         RE: Some recovery but the game is still on! bowho Apr-06-09 5
             RE: Some recovery but the game is still on! Bob Apr-06-09 6
                 RE: Some recovery but the game is still on! bowho Apr-07-09 9
                     RE: Some recovery but the game is still on! Bob Apr-07-09 10
     RE: Some recovery but the game is still on! pim Apr-07-09 7
  RE: Some recovery but the game is still on! janis Apr-14-09 11
     RE: Some recovery but the game is still on! bowho Apr-14-09 12
         RE: Some recovery but the game is still on! janis Apr-15-09 13
             RE: Some recovery but the game is still on! bowho Apr-15-09 14
                 RE: Some recovery but the game is still on! janis Apr-16-09 15
                     RE: Some recovery but the game is still on! bowho Apr-16-09 16

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Bob
Member since Aug-6-07
267 posts
Apr-04-09, 08:43 PM (CST)
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1. "More progress towards my recovery!"
In response to message #0
 
   LAST EDITED ON Apr-04-09 AT 10:21 PM (CST)
 
Hello ALL!

It's nice to be able to post again. I have made further progress in my quest to cure my damaged lingual nerve and resultant paresthesia from an injection of articaine. After almost two years, I am now 60% better than I was originally... and this is VERY significant. I'm able to smile and enjoy life at times now without thinking about my plight. This is huge! I've started a few new things... so I thought you should know.

1. I'm using a "Statison" veterinary medical device designed to heal broken bones with specific electromagnetic frequencies. The inventor (a veterinarian friend) claims these same frequencies have been shown to heal nerves. I use the device for 40 minutes a day... there is no sensation when using it and no side effects at all. You simply have to hold the device over the area where the damage occurred. A similar device is available for humans with broken bones although it is not called a Statison.

2. I'm taking St. Johns Wart tincture... about 60 drops a day (split up). I drizzle the herbal tincture onto the injection site. This seems to numb the area and relieve pain, but long term I've been told this may indeed heal a damaged peripheral nerve. I also rub St. John's Wart oil into my skin under my jaw on the side of the damaged nerve. Another herb, Boneset, is used for damaged nerve sheaths... I've not started using this yet, but I may in the future.

3. I'm using medical marijuana... initially I hoped to relieve some of the burning pain with this (I use it 3 times weekly). I'm not sure if it's helping or not, but like I said I haven't felt this good in 2 years. There is good research showing that THC (tetrahydrocannabinol) does indeed heal damaged nerves. I started all three things around the same time... about two weeks ago. Something has worked quickly to relieve my torture and I couldn't be happier (well, not true, I'm not cured yet), but honestly I have renewed hope that with time and continued perserverence my lingual nerve will be healed completely. THAT will be the day (and no I'm not high as I write this!).

Bob


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charlottefr
Member since Feb-22-08
402 posts
Apr-05-09, 06:43 PM (CST)
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3. "RE: More progress towards my recovery!"
In response to message #1
 
   Bob..I am so happy for you!! That is amazing that you have had such a dramatic change in your symptoms You even 'sound' happier in your post! I hope you can somehow find out which of the things you tried have made a difference...or in what combination! I hope that every day brings you furthur progress!


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sgdaus2007
Member since Feb-27-08
124 posts
Apr-07-09, 08:23 PM (CST)
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8. "RE: More progress towards my recovery!"
In response to message #1
 
   Bob,

Are these statison devices sold on-line or is there anywhere you could direct me?

What happened with the magnets? I thought you were using them....

Am 14 months now, how the hell I've lasted so long astounds me. Pain comes and goes but at least I'm not on any drugs. Tightness and sensitivity still trouble me but what can you do?

Any advice on the points above would be welcomed.

S


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charlottefr
Member since Feb-22-08
402 posts
Apr-05-09, 06:36 PM (CST)
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2. "RE: Some recovery but the game is still on!"
In response to message #0
 
   Welcome to the forum, janis. I'm sorry that the forum wasn't working just after you wrote your post...but it's back up now! Your english is very good!

Anyway, thanks for your post. You made some very good suggestions. I'm not sure I understand exactly how you got injured though. It sounds like you have some kind of injury to the inferior alveolar nerve. Is that what your doctors are telling you?

My IA nerve was injured in jan 2008...and I'd estimate that I'm maybe 80% back to 'normal'. I was also told to just wait...and my OS didn't offer any other means of coping or dealing with the pain and discomfort.

I totally agree that one's physical condition plays a huge part in recovery. Whenever I have a cold or a touch of the flu, symptoms seem to flare up. I've also had a few glasses of wine from time to time...and I find it helps also. I wonder if you have no pain under the shower because the water stimulates the area?? I know that other people can't stand the feeling of the water hitting the numb area of the chin...I was one of them. Now...l5 months later I can cope with showering again...but rubbing or scratching my lip or chin still sends little shockwaves throughout.

I've just recently started using an electric toothbrush on the advice of my dental hygenist...and I don't know if it's my imagination or not but I do feel that my gum may have made some small progress to regaining feeling because of it? I spend an extra few seconds massaging the gum area gently with the brush...visualizing my nerve being stimulated. Maybe I'm nuts, idk

Your point about fear and anger management is so true...there are days that I'm still angry. This has been one event in my life that has been very difficult to even begin to forgive and forget. I think that's because I keep thinking of all the others who are being injured and who are still simply being sent home alone to deal with it...to wait. I really liked your quote at the end of the post..thanks.

"If you think you canīt stand it anymore... a small light will come to you and drive you further."


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Dr B
Member since Oct-6-06
877 posts
Apr-06-09, 01:07 PM (CST)
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4. "RE: Some recovery but the game is still on!"
In response to message #2
 
   So we are back up now?

Dr B


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bowho
Member since Nov-26-07
782 posts
Apr-06-09, 04:18 PM (CST)
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5. "RE: Some recovery but the game is still on!"
In response to message #4
 
   Hello Everyone.. I see Bob has taken to smoking weed for relief this past month Hey i tried it once!! But it didn't do anything for my LND,it made it worse.. 3 times a week huh Bob? Let us know what 3 times a day does for ya? What exactly does it relieve for you? 60% better from 30% is a big jump in the relief dept. Good to hear it


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Bob
Member since Aug-6-07
267 posts
Apr-06-09, 09:13 PM (CST)
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6. "RE: Some recovery but the game is still on!"
In response to message #5
 
   LAST EDITED ON Apr-06-09 AT 09:19 PM (CST)
 
bowho,

LOL! No I only use it three times a week... it seems to numb the burning a bit and of course when you're high it takes your mind off it somewhat. More importantly I am much less uptight and angry, I feel more relaxed. It helps but what I think helped me the most was the Statison device. I use it twice daily. I'm hoping that within 3 - 6 months it will heal my nerve completely... we shall see. It certainly works for broken bones, I can attest to that and like I said, something has given me significantly more relief. I still get burning but now the relief can last a few days while before it would last only a few hours to a day at the most. Something is changing... I hope!


Here is an excerpt from the research being done on neurogenesis.


"Neuroscientist 2007 Apr; 13
In this Research Update, the authors address the experimental evidence regarding the regulatory role of cannabinoids in neurogenesis and analyze them in the context of those pathological disorders in which cannabinoid function and altered neuronal or glial generation is most relevant, for example, stroke and multiple sclerosis.

Professor Xia Zhang, and his neuropsychiatry research unit team at the University of Saskatchewan, in 2005, found that rats treated with HU-210, a potent synthetic cannabinoid, on a regular basis showed neurogenesis - the growth of new brain cells in the hippocampus. The effect is the opposite of most legal and illicit drugs such as alcohol, nicotine, heroin, and cocaine. "Most 'drugs of abuse' suppress neurogenesis," Zhang says. "Only cannabis promotes neurogenesis." As a medicine, the plant is used to ease pain in multiple sclerosis patients, combat nausea in cancer patients, and stimulate appetite in people afflicted with AIDS. It has also been used to treat epilepsy and stroke."


Bob


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bowho
Member since Nov-26-07
782 posts
Apr-07-09, 09:36 PM (CST)
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9. "RE: Some recovery but the game is still on!"
In response to message #6
 
   LAST EDITED ON Apr-07-09 AT 09:37 PM (CST)
 
Well the research update is interesting Bob.. For me it aggravated my tongue with the coughing.. It didn't give me a relaxed feeling with my tongue throbbing into a tight grip feeling.. Something must be working for you to have such an improvement..Keep up with what you are doing if its working!! I know medical marijuana is legal in Calf... Were you prescribed the 3 times a week?

Funny how the site has been down for a month and we end up here on successful recovery stories seeing.. "If you think you canīt stand it anymore... a small light will come to you and drive you further." And pim and Dawn may have a chance at that also i hear... I see Charlotte is having some improvements also.. Hopefully Janis will pop back on to join in..


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Bob
Member since Aug-6-07
267 posts
Apr-07-09, 11:22 PM (CST)
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10. "RE: Some recovery but the game is still on!"
In response to message #9
 
   bowho,

No I wasn't prescribed 3 days a week... I decided on that protocol myself. I work full time and need my mind to be as sharp as I can get it. Having this injury has put a crimp in that department... and added immeasurably to my stress levels. I run 12 -15 miles a week which really helps my energy levels, stress, and mind. The cannabis helps me to relax... I don't cough from it and take it in very small amounts... just enough to take the "edge" off my stress level. It seems to be helping with my pain as well, even into the following day. I still think the Statison device is helping heal my nerve... or is at least reducing pain and inflammation. It's hard to know which is working but I really don't care so long as I continue to improve even incrementally.


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pim
Member since Oct-19-06
349 posts
Apr-07-09, 10:17 AM (CST)
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7. "RE: Some recovery but the game is still on!"
In response to message #2
 
   LAST EDITED ON Apr-07-09 AT 10:21 AM (CST)
 
I also am not bothered by water or anything else touching my lip/chin. I think that having that sensitivity is a separate issue in pain level. When I went to a microsurgeon (Meyers-Atlanta) trying to get someone to graft this nerve or ANYTHING to fix it, I was told that I would be all but guaranteed in more pain and that sensitivity was one issue that he said could happen. The other was drugs stop working. Either way, just the thought was horrifying so, I stopped looking for a fix...but no one would touch me anyways because I failed the numbing test.

I finally left work permanently in February and have been able to better control my pain w/o the stress. I still have spikes when I get aggrevated/stressed but I'm able to get them back under control. I live with a lower overall pain level now...sadly still there tho...and am BORED TO DEATH! I loved my job and didn't want to give it up but I couldn't keep going. Even I am surprised at how much the stress contributed. I left once before for 3 months and it helped but not like now. This time I had to give up any thought of going back. Before, I was just trying to get a temporary break to get my pain level loaded (ha). I don't think I've cried more than one time over the last 1.5 months since I left. It was almost daily before.

A couple of us have been looking into Motor Cortex Stimulation like someone posted to Dawn a while back. It is a drastic surgery but appears to really be helping some. We haven't found many with dental type injuries, mostly TN, but docs claim it helps both. I have an appt in May with a NY neurosurgeon to discuss it. Folks may want to do some research - none of my doctors knew anything about it. Apparently only the neurosurgeons know what the neurosurgeons are doing. How did we ever survive w/o the internet?

There are people who belong to the Trigeminal Neuralgia Association who are willing to discuss their experience. If you want the list, contact them thru their website at www.endthepain.org.


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janis
Member since Mar-3-09
5 posts
Apr-14-09, 03:38 AM (CST)
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11. "RE: Some recovery but the game is still on!"
In response to message #0
 
   Hi everyone,

thank you for the warm welcome to this forum. It is so interesting to read how different each story is and how complex the topic actually is.

I for my part won't stop searching until I find permanent relief and contribute to others.

I saw I new neuro here in Sweden to continue my treatment. He was really aware of the problem... Very intresting, the first i ve seen so far. His advice was, control the pain and wait it out. But thats nothing new.

Besides that I got chiropratic treatment a couple of times during the last weeks and what do i have to say, it got some movement in my burning face and lowered the pain. The doctor said my neck was so stressed after all these dental treatments. Maybe this is an option for others too.

What I am thinking about right now is. If a nerve hurts but is not numb, it can't be that much damaged right? My pain is getting worse when I am talking a lot or moving my jaw, as if someone irritates the nerve everytime it is moved. What are your thoughts about that?

I would really like to compare symptoms with others having inferior aveolar nerve damage. It would be good though to describe it better as a disease. Makes it easier to give it a name like "bts" for lingual nerve damage.


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bowho
Member since Nov-26-07
782 posts
Apr-14-09, 08:27 PM (CST)
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12. "RE: Some recovery but the game is still on!"
In response to message #11
 
   LAST EDITED ON Apr-14-09 AT 08:43 PM (CST)
 
Whats bts? Biting tongue sessions or Bitch time sharing? Thats about what my lingual nerve damage has come down too.. If i could get rid of the numbness i could loose "the bts"

Other than that,word around this site is if you have the painful nerve healing without the numbness, chance of recovery may be better. If you have days that feel like its 70% better, consider yourself in the light at the end of your misery..

Do you know what was used in the root canal tooth that had to be extracted?
http://www.sargentipaste.org/

http://www.dentists-advantage.com/rskmgt/casestudy/getCase.jsp?id=295


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janis
Member since Mar-3-09
5 posts
Apr-15-09, 02:40 AM (CST)
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13. "RE: Some recovery but the game is still on!"
In response to message #12
 
   BTS is burning tounge syndrom.

The root canal tooth... hmm good question I guess it was CaOH and than some cement. But the weird thing though is it was prefilled with a med that only exists in Germany. Its called LederMix and is a mixture of tretracyclin and cortisone. It caused a heavy allergic reaction in my case.

I don't feel like I have any numbness at all (maybe sometimes a little). My problem is only pain. Isn't that weird?


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bowho
Member since Nov-26-07
782 posts
Apr-15-09, 03:23 PM (CST)
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14. "RE: Some recovery but the game is still on!"
In response to message #13
 
   So this all started with a filling then a root canal then an extraction? You have burning shocking pain in you lip,chin,face,gums and tongue? Sorry about not knowing what "bts" is.. In America we call that "bms" burning mouth syndrome.. But i only have the burning numb tongue syndrome myself and the biting tongue sessions.. From an extraction maybe or it may have the injection of the numbing stuff.. Im not 100% sure.. All i know is that i ended having scar tissue removed that gave me some relief.. I had 3 other dentists opinions before that surgery happened.. Have you gone to another to get a second opinion yet? You should.. Some people here dont have the numbness so no just pain is not weird.. Most here know what a lonely dark road living like this can be and i guess thats why we ended up on this site sharing the misery..


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janis
Member since Mar-3-09
5 posts
Apr-16-09, 12:19 PM (CST)
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15. "RE: Some recovery but the game is still on!"
In response to message #14
 
   Hey Bowho,

thats intresting what u write. My symptoms are unfortunately not limited to my lower jaw. I know that it all started off really badly. It might have been the injection but i am not quite sure. The weird thing is that my symptoms are not limited to the aveolar inferior nerve but to the whole trigeminus. Efen the tip of mig tounge feels weird some times. Other than that do i have pain even in my face, eye brown, cheek, nose but it really comes and goes. When i wake up in the morning i feel almost nothing except one area in my lower jaw which is very sensitive to touch.

I am getting an MRI done now, because my new neuro thinks it might be an trigeminal nerve inflammation.

All doctors I ve seen so far said, wait it out.

After I got the tooth removed things got better, but i am far from painfree today. Everthing is so day to day dependend.

What I am intrested in is, how is the surgery actually done. "Looking at the nerve" sounds very messy if u ask me. Compared to the IA nerve the lingual nerve is much easier to reach, or am i wrong?

Did u experience pain in any other of the trigeminal nerves as well or just the lingual?


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bowho
Member since Nov-26-07
782 posts
Apr-16-09, 11:55 PM (CST)
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16. "RE: Some recovery but the game is still on!"
In response to message #15
 
   Sorry to hear you have such problems going on

My lingual nerve damage only affects my tongue and jaw on one side. It used to be 24/7 torturous pain that i thought would never end.

We are all told just wait it out. And in realty thats all there is to do.

Even though i had a repair surgery i didnt wake up cured the next day.I didnt really feel better until around the 5th year after.

Have you ever taken your records and xrays to another dentist for a second opinion? I had 4 opinions in the first 4 months.. Alot of us here have had the MRI done because the neurologist requests it. Mine didnt show anything. All the neuro could offer me was neurontin and a diagnosis of permanent lingual nerve damage with bms. It was an oral & maxillfacial jaw surgeon that helped me the most.. The nerve was looked at by slicing my cheek open on the inside and from the molar to the canine on the jaw. Not a pleasant experience and very painful.. I am not in 24/7 burning shocking pain anymore or drugged. I hope you find out what happened to your nerves soon and that you heal.
Heres a link that shows the nerves..
http://www.dentalindia.com/lingual.html


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