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Lingual and Inferior Alveolar Nerve Damage Discussion Site

Subject: "Lingual nerve microsurgery"     Previous Topic | Next Topic
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MP
unregistered user
Mar-28-03, 05:31 PM (CST)
 
"Lingual nerve microsurgery"
 
   i was wondering if anyone out there has had the procedure done and obtained a positive result. please respond even if u have had a negative result. my wife is considering surgery b/c she has no taste and very limited sensation on BOTH sides of her tongue following wisdom teeth removal 6 mo. ago. she also has dry mouth and i was wondering if anyone else had that symptom, because i have not seen that anywhere. thanks


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  Subject     Author     Message Date     ID  
  RE: Lingual nerve microsurgery Sara Mar-31-03 1
     RE: Lingual nerve microsurgery Joanne Mar-31-03 2
  RE: Lingual nerve microsurgery kerrie_portland Mar-31-03 3
  RE: Lingual nerve microsurgery DeCristo (Don) Mar-31-03 4

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Sara
unregistered user
Mar-31-03, 12:02 PM (CST)
 
1. "RE: Lingual nerve microsurgery"
In response to message #0
 
   So sorry to hear your wife is suffering from lingual nerve damage on both sides... I still have a hard time dealing with it on "only" the one side... Haven't had microsurgery because I was told it wasn't an option for me... However, I want to respond to the question on dry mouth... I had this in the beginning, too, and I thought it was from the stress of dealing with the numbness and pain. I drank a lot of water, but it didn't seem to help. After a while, I didn't notice it anymore (it improved). I'm sure that I've read here that more people have experienced dry mouth, so she is not alone. But it should go away in time. Best wishes to you and your wife...


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Joanne
Member since Jan-17-03
503 posts
Mar-31-03, 12:37 PM (CST)
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2. "RE: Lingual nerve microsurgery"
In response to message #1
 
   Hi,
I can only respond about the dry mouth. I have that too (I don't have lingual nerve damage but suffer neuralgia due to extraction), but think it is because of the amitryptiline (Elavil) I am taking to manage the pain. I found a special mouthwash called Biotene (in the drugstore) that has the natural enzymes that saliva has - it keeps the mouth healthy, because dry mouth can lead to other dental problems - and it is not harsh like the other ones. It is a bit more expensive but worth it. I'm in Canada, don't know where you are, but it should also be avail in the US.
Good luck,
Joanne


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kerrie_portland
unregistered user
Mar-31-03, 01:30 PM (CST)
 
3. "RE: Lingual nerve microsurgery"
In response to message #0
 
   Yes, I had the surgery without even knowing it at the time. My injury is a bit diff. from most of these posted. I did not have a dental procedure done. My injury was due to a surgery gone wrong, the ENT was trying to remove a unknown bump under my tounge and well he cut too deeply according to him and he almost completely severed my lingual nerve. He noticed what he did at the time and re-connected the nerve. However, there is no guarantee that the nerve will grow back and regenerate itself ie., that it will be the same as before the surgery. The Dr. just keeps telling me we have to wait and see. I can say that it's been just over 5 weeks since my surgery and I'm still very numb, still taking Percocet to manage the pain when needed and have increased the dosage of Neurontin to help with the tingling and burning tounge.
I too have a bit of a dry mouth but... my surgery that went bad.... the Dr. couldn't find that bump in my mouth when he got in there, so instead he took out a healthy, normal spit gland, so I'm one less than normal so it would make since that I'm not producing as much spit. I'm now having the lower mandibular gland in my neck giving me problems. Ever since the surgery, every time I eat it swells up to the size of a golf ball or bigger and becomes quite painful to try to eat so most of the time I just give up on eating and go hungry. The swelling does go down after about 10-15 minutes so the Dr. thinks it just a clogged gland. He tried to dialate it this morning, well see it that helps.
All I can say is I think that I will get better, it just takes a very long time to recover. I can say that because I have had increased pain, tingling and burning in my tounge the past week and even though it sucks to be in pain, by all accounts it means recovery is happening. I also have had ever so slight improvement in the back of my tounge, I could not feel anything before I can now feel some sensation.
Good luck to everyone and THNAKS for being here, it has really helped me!!!!!


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DeCristo (Don)
unregistered user
Mar-31-03, 08:50 PM (CST)
 
4. "RE: Lingual nerve microsurgery"
In response to message #0
 
   Hi MP,

I had lingual nerve microsurgery done on November 20, 2002. My lingual nerve was penetrated by a fixation screw used in a prior jaw surgery. To date I have not regained any of my sensation, taste, or feeling. The micro surgeon said it would be at least 6 months before any of the above begin to return. I have not experienced dry mouth through this whole ordeal, however, my tongue does feel very thick and I constantly have a metal taste in my mouth.

If your wife is considering the surgery my advice is to seek out a surgeon who is HIGHLY specialized in this area. To the best of my knowledge there are only a handful of them in the U.S. Dr. B or Ross may be able to provide you with some names. If you would like the name of my surgeon you can email me at decristo@excite.com.

Another thing to keep in mind there is window of opportunity for this surgery to be successful. Most surgeons recommend having it done within 6 months of the original injury, however, this time frame can fluctuate depending on the type of injury (damaged vs. severed) and also the age of the patient. I have been keeping everyone on this site updated throughout this process and will continue to do so. You will find some of my other posts under the subject of "lingual nerve repair surgery." Tell your wife to keep all of her options open and I wish the both of the best of luck with whatever decision you make.

Don


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